Every day people with chest, heart and stroke conditions are leaving hospital scared and alone. You can be part of our mission to make sure that there is no life half lived in Scotland.

We believe there should be No Life Half Lived in Scotland. With your support, we can make sure people with chest, heart and stroke conditions and Long Covid can do more than survive – they can really live.

Our No Life Half Lived strategy outlines our belief that every person with our conditions should have access to quality supported self-management and community recovery. We will deliver an approach to this that is designed by people with our conditions and puts what matters to them at the heart. We will work to develop the partnerships that will enable this to be available across Scotland.

Our vision is to help shape a Scotland where people with our conditions can live their lives well. Full lives, with the right support, at the right time, and in the right place.

To deliver the strategy we have embedded a project management function which:

• To accurately and transparently record the delivery of the NLHL #2 strategy.
• Capture changes and decision making within projects.
• Develop and implement successful project and programme governance.
• To ensure staff feel supported in the initiation, planning and delivery of NLHL #2 projects across the organisation.
• Create realistic project schedules and plans to ensure the delivery within the allocated timeframe.

CHSS employees enjoy a variety of organisational benefits including: Company pension scheme, generous holiday allowance, company sick pay, employee welfare support and life assurance.

CHSS also supports flexible recruitment through Working Families and we are “Happy to Talk Flexible Working”.

What we offer

• Generous annual leave entitlement (37 days - 25 days annual leave plus 12 days public holidays)
• Increasing annual leave days to recognise long service (after 4 years)
• Contribution pension scheme
• Flexible hybrid approach to work
• Regular supervision

Are you looking for a role in which you will improve the lives of families in your community? A role that enables you to work differently, build your knowledge and skills and feel valued by clients, colleagues and the organisation you work for?

We are looking for a Health and Social Care professional with line management experience to lead our Greater Glasgow & Clyde Specialist Service, part of our nationwide network providing care management, specialist assessment and emotional support to individuals and families.

In addition to managing your own client case load, you will line manage a team of HD Specialists and an Admin/Resource Worker, ensuring the right supervision, support and development opportunities are in place.

The role involves working closely with the HD Clinical Lead (a Senior NHS employed doctor such as psychiatrist, neurologist or geneticist) in addition to our Services Team Lead and the Deputy Chief Executive/Head of Services to manage and develop the service.

Working in partnership with local Health and Social Care teams, you will also provide advice, training and education to professionals and voluntary agencies involved in all aspects of Huntington’s disease care in Greater Glasgow & Clyde.

The successful candidate will be enthusiastic and motivated to have a positive influence on the quality of life of the individuals and families they support. This role is open to medical and health and social care staff from backgrounds such as nursing, allied health, social work and medicine. Professional body membership is essential. Previous experience of Huntington’s disease is advantageous but not essential as full training will be provided.

You should be able to work autonomously in this challenging and rewarding position. Good listening, communication and interpersonal skills are vital, as are excellent time keeping and caseload management abilities. Community-based practice knowledge, a driving licence and use of a car is also essential. The successful candidate will be subject to an enhanced disclosure check.

About Scottish Huntington’s Association

People impacted by Huntington’s disease need specialist services to cope with a severe and complex disease, the impact on families and a lack of awareness amongst health and social care providers and the wider public.

Scottish Huntington’s Association is the only charity in the country exclusively dedicated to providing expert and personalised support for those impacted by Huntington’s disease.

Our support reduces unnecessary hospital admissions; supports carers and other family members; lowers household poverty; and alleviates wellbeing risks to children and young people living in Huntington’s families.

We are commissioned by NHS Boards and Health and Social Care Partnerships throughout the country to share our expertise with front line staff and build support for improved services and higher standards of care for every family impacted by this devastating disease.

About Huntington’s disease

Huntington’s disease is caused by an inherited faulty gene that damages the brain over time. People with the disease can eventually lose the ability to walk, talk, eat, drink and care for themselves, requiring specialist support from those who understand the condition.

The disease is genetic, meaning it is passed down from one generation to the next. It therefore impacts entire families over generations rather than individuals alone. Anyone with a parent who has Huntington’s has a 50% risk of inheriting the condition from them.

Around 800 people in Scotland are living with the symptoms of Huntington’s disease right now. A further 3,200 are estimated to be at risk of developing Huntington’s disease as a result of inheriting the faulty gene.

At Scottish Huntington’s Association we are entering the second year of Standing Tall: A Strategy For Growth 2023 – 28, designed to transform the care and support of Huntington’s families. The launch of our strategy followed two years of expansion in specialist teams, increased funding, a rise in media engagement, and growth in parliamentary support for our work.

You will find a values-driven organisation, founded by families for families and recognised at national and international levels for expertise in supporting the Huntington’s disease community.

Scottish Huntington’s Association is committed to promoting equal opportunities in employment.