This vacancy has now closed

Huntington's Disease Specialist

  • Full time
  • £32,880 – £36,375
  • Lothian - Home based at present, pending securing new office space Hybrid working model thereafter (office and home based)
  • Closing 12th June 2023

  • Advertised from 23rd May 2023
  • 36 hours per week


Are you an experienced health or social care professional who has a passion to improve the quality of life and experience of those living with a neurological condition? Then this challenging and extremely rewarding role offers the opportunity to share your expertise, develop your clinical practice and work with a team of

like-minded individuals who support the Huntington’s disease community.

You would join our Lothian Service as a full-time Huntington’s Disease Specialist, in a role funded by Lothian’s Health and Social Care Partnerships.

About the role

Our Huntington’s Disease Specialists facilitate quality care for those impacted by Huntington’s disease and their families throughout the Lothian area. You will focus on case management, specialist assessment, anticipatory care planning, and coordination of support. This requires partnership working with, and signposting to, appropriate professionals/agencies.

Previous experience of working with Huntington’s disease is preferred but not essential. We will provide you with all the condition-specific knowledge you need in addition to funding your place on Stirling University’s CPD course ‘Huntington’s Disease: An enabling approach to supporting families’, delivered in collaboration with Scottish Huntington’s Association.

About you

  • You will have an allied health profession, nursing or social work background and current professional body membership
  • You will be a skilled communicator with good listening and inter-personal skills
  • You will be enthusiastic and motivated to have a positive influence on the quality of life of the individuals on your caseload
  • You will have a current UK driving licence and access to a car
  • You will have experience of managing the conflicting priorities of a complex, community-based caseload
  • You will be able to demonstrate your ability to work autonomously as an integral part of a small team

About us

Scottish Huntington’s Association is the only charity in Scotland dedicated exclusively to families impacted by Huntington’s disease, a devastating hereditary, neurodegenerative condition that causes severe and complex physical, mental and cognitive symptoms. There are currently 800 people in Scotland with symptoms of Huntington’s disease and a further 3200 believed to be at risk of developing the condition.

The successful candidate will join Scottish Huntington’s Association at an exciting time as we prepare to launch Standing Tall: A Strategy for Growth 2023 – 28 to transform the care and support for Huntington’s families throughout Scotland. We are an ambitious and hard-working organisation, recognised at national and international levels for our expertise and approach.

What we offer

  • Salary of up to £34,976 per annum
  • 36-hour working week
  • Generous 32 days annual leave plus 5 fixed public holidays on appointment
  • Increasing annual leave days to recognise long service (after 5 years)
  • Contribution pension scheme
  • An extended and thorough induction period with ongoing commitment to your training and CPD opportunities
  • A flexible, hybrid approach to work
  • Regular, clinical supervision
  • Attention to facilitating peer support with the HD Specialist team throughout Scotland

Application notes

For an informal chat about the role, please contact Linda Lucas (Team Leader) or Trevor Law (Senior HD Specialist, Lothian) on 0141 848 0308.

Further information and an electronic application pack can be obtained below or from: David McNiven (Fundraising Operations and Administration Officer), T: 0141 848 0308 E:

Closing date for applications: Monday 12 June 2023

Interview date: Tuesday 20 June, Longstone Resource Centre, Edinburgh

SHA is a registered charity and is committed to promoting equal opportunities in employment. Scottish Charity No: SCO10985.