This vacancy has now closed

Huntington’s Disease Specialist

  • Full time
  • £31,615 – £34,976
  • Lothian Home based at present, pending securing new office space Hybrid working model thereafter (office and home based)
  • Closing 28th April 2023

  • Advertised from 5th April 2023
  • Pay review pending. Hours: 36


Are you looking for a role in which you will contribute to improving the lives of families in your community and beyond? One that encourages you to share your expertise, develop your clinical practice and feel valued by colleagues, clients and the organisation you work for?

We are looking for a full-time Huntington’s Disease Specialist to join our Lothian service. Funding for this post is provided by Lothian’s Health and Social Care Partnerships.

The successful candidate will join Scottish Huntington’s Association at an exciting time as we prepare to launch Standing Tall: A Strategy for Growth 2023 – 28 to transform the care and support available to Huntington’s families.

This follows two years of expansion in specialist teams, increased funding, a rise in media engagement, growth in parliamentary support for our work, and the success of our ground-breaking Dance 100 event in Glasgow.

Our Huntington’s Disease Specialists provide care management, specialist assessment and emotional support to individuals, and their families, throughout the Lothian area. The small team works in partnership with local Health and Social Care teams, and provides advice, training and education to professionals and voluntary agencies involved in all aspects of HD care. We are looking for someone who is enthusiastic, motivated and who will have a positive influence on the quality of life of the individuals on their caseload.

We invite applications from experienced individuals from an allied health professional, nursing or social work background and you must have a current professional body membership. Previous experience of working with Huntington’s disease is preferred, but not essential. We will provide you with all the condition-specific knowledge you need.

The successful candidate should be able to work autonomously in this challenging and innovative post. Good listening, communication and interpersonal skills are vital, as are excellent time keeping and caseload management abilities. Community-based practice knowledge, a current driving licence and the use of a car complete our list of essential criteria. The successful candidate will be subject to an enhanced disclosure check.

Scottish Huntington’s Association is the only charity in Scotland dedicated exclusively to families impacted by Huntington’s disease, a devastating hereditary condition that changes the brain and causes severe and complex physical, mental and cognitive symptoms. You will find an ambitious and hard-working organisation, recognised at national and international levels for its expertise and approach.

Application notes

Further information and an electronic application pack can be obtained from:

David McNiven (Fundraising Operations and Administration Officer)

T: 0141 848 0308 E:

Closing date for applications: 28 April 2023

SHA is a registered charity and is committed to promoting equal opportunities in employment. Scottish Charity No: SCO100985.