Are you passionate about working with children and young people? Can you work with families to make a positive change
to their lives? Can you provide ongoing tailored support through one-to-one sessions, group work, residentials
and camp?
An exciting opportunity has arisen to join Scottish Huntington’s Association Youth Service as a Specialist Youth
Advisor providing support for vulnerable children and families throughout Highland, Grampian and Moray through
bespoke, individual sessions. If you are someone with dedication, talent and expertise, we want to hear from
you.
Scottish Huntington’s Association Youth Service works with children and families aged 8-25 impacted by familial
Huntington’s disease. To affect positive change for our families, we focus on a person-centred approach to
managing Huntington’s disease including psychoeducation, information and advice, peer support and respite
opportunities. The Specialist Youth Advisor role is pivotal and will provide a vital link in supporting young
people in this region in line with the strategic aims of Scottish Huntington’s Association.
You will be responsible for your own caseload and will help plan and co-ordinate group work sessions, activity days,
residentials and our summer camp.
Highly organised with a proven ability to build trusting relationships, you will help to empower children and young
people to manage the complexities of living with Huntington’s disease and their own genetic risk. Experience of
child and adolescent mental health difficulties, young carers’ issues and child protection is advantageous.
Previous experience or knowledge of Huntington’s disease is preferred but not required as full training and ongoing
mentorship will be provided.
You will work from home with regular travel throughout Highland, Grampian and Moray. There will also be travel
required for organisation-wide meetings.
This post will include out-of-hours and periodic weekend working. In addition to a competitive salary, we offer
benefits including flexible working practices, a generous leave allowance totalling 37 days (25 days annual
leave and 12 days public holidays, pro-rata), a competitive contribution pension scheme and incremental pay
increases (pro rata) to top of scale.
About Scottish Huntington’s Association
People impacted by Huntington’s disease need specialist services to cope with a severe and complex disease, the
impact on families and a lack of awareness amongst health and social care providers and the wider public.
Scottish Huntington’s Association is the only charity in the country exclusively dedicated to providing expert and
personalised support for those impacted by Huntington’s disease.
Scottish Huntington’s Association is the only charity in the country exclusively dedicated to providing expert and
personalised support for those impacted by Huntington’s disease, guided by our five-year plan, Standing Tall –
A Strategy for Growth 2023 – 2028.
Our personalised support reduces unnecessary hospital admissions, supports carers and other family members; lowers
household poverty; and alleviates wellbeing risks to children and young people living in Huntington’s
families.
We are commissioned by NHS Boards and Health and Social Care Partnerships throughout the country to share our
expertise with frontline staff and build support for improved services and higher standards of care for every
family impacted by this devastating disease. Scottish Huntington’s Association also plays a full and active role
in attracting the global research community to Scotland to work in partnership with us to improve the lives of
families impacted by Huntington’s disease.
At Scottish Huntington’s Association you will find a values-driven organisation, founded by families for families and
recognised at national and international levels for its expertise and support. Our services are delivered
through a nationwide network of Huntington’s Disease Specialists, Specialist Youth Advisors and Financial
Wellbeing Officers.