Myeloma UK is the only UK charity focused on myeloma and its related conditions. We ensure people affected by myeloma get the support, information and treatments they need and fund essential research towards a cure. We are here for people affected by myeloma, for healthcare professionals and researchers – and anyone who wants to be part of the cure, to make sure no-one faces myeloma alone because together we are the cure.

It is an exciting time to be joining Myeloma UK having recently launched our new strategy. We have the ambition to double our income over the next five years, allowing us to significantly increase both our reach and impact so that those affected by myeloma can live longer and have better quality lives.

To support our vision for a world where myeloma doesn’t exist, and due to an impending retirement, we are looking to recruit into the business critical role of Director of Finance. With accountability for the financial stewardship of the charity, encompassing effective financial control and reporting, you will also play a major role in shaping the strategic development and future direction of Myeloma UK, working with colleagues at the cutting edge of myeloma research, advocacy, and support. As a member of an experienced Executive Leadership team, you will work collaboratively to develop Myeloma UK’s strategies, goals, priorities and outcomes and report progress to Board.

The role requires a qualified accountant who is an inspiring and solutions-focused leader, able to demonstrate relevant experience of having supported the ongoing development and strategic growth of an organisation, either within the voluntary or private sector. The successful candidate will also bring well-developed business/commercial skills and the ability to get “behind the numbers” and carry out complex numerical and financial calculations and analysis to allow well-informed commercial decisions.

About us

The Queen’s Nursing Institute Scotland (QNIS) is a small charity making a big difference. QNIS supports, develops and inspires Scotland’s community nurses and midwives to be agents for health improvement and catalysts for social change. We help them develop their wellbeing and commitment to self-care so they can drive positive action to build a healthier, kinder, fairer, greener Scotland.

About the role

The current post holder has been leading QNIS for 10 years and is moving on to take up a new role. For the right person this is a great opportunity to shape the evolution of the Queen’s Nursing Institute Scotland as it enters a new chapter. As Chief Executive and Nurse Director, you will have the chance to lead the strategic direction of the charity. Working with a group of expert and committed trustees, the postholder will be responsible for the development of a small charitable organisation with a large reputation.

As Chief Executive, the postholder is accountable for the running of the charity, providing leadership and management to the team of 10 staff (6.5 WTE) and the delivery of programmes. They will lead on strategy, vision and values creating a compelling narrative to support income generation. They will nurture and manage relationships with funders and potential funders to enable a sustainable future.

As Nurse Director, the role requires representing the Institute and community nursing/midwifery in strategic forums, bringing professional expertise, good evidence and wisdom to high level discussion.

The post holder is accountable to the Board of Trustees (QNIS Council). They have regular meetings with the Chair and an annual appraisal. The post is full time (37.5 hours), based in our office in central Edinburgh, with scope for flexible working from home. We are offering a salary of £84-90k depending on experience. There is 10% employers’ contribution to a group pension scheme, life cover and 28 days annual leave plus 10 bank holidays and an additional birthday leave day.

About you

A nurse, or midwife, you will be an experienced leader and manager. You will be highly numerate, able to set, monitor and manage financial plans including fundraising. You will be experienced in and knowledgeable about governance, particularly managing risk.

To support and supervise the team, you will be an experienced programme manager; familiar with designing and managing processes, budgets, evaluation and reporting on impact. You will be a highly skilled facilitator of learning and improvement, experienced in creating safe spaces for development. You will bring a range of creative, methodologies for improvement and change.

With a broad and deep knowledge of the health and social care policy landscape of Scotland, you will have a nuanced understanding of the range of issues affecting community nurses and midwives and Scotland’s public health challenges.

You will be highly self-aware and committed to wellbeing and self-care of yourself and others, bringing your own compassionate and creative leadership to setting a healthful workplace culture for the team at QNIS.

For more information about the role and the organisation, please download the Excellence Profile and visit the QNIS website.

What we offer

• Generous annual leave entitlement (37 days - 25 days annual leave plus 12 days public holidays)
• Increasing annual leave days to recognise long service (after 4 years)
• Contribution pension scheme
• Flexible hybrid approach to work
• Regular supervision

Are you looking for a role in which you will improve the lives of families in your community? A role that enables you to work differently, build your knowledge and skills and feel valued by clients, colleagues and the organisation you work for?

We are looking for a Health and Social Care professional with line management experience to lead our Greater Glasgow & Clyde Specialist Service, part of our nationwide network providing care management, specialist assessment and emotional support to individuals and families.

In addition to managing your own client case load, you will line manage a team of HD Specialists and an Admin/Resource Worker, ensuring the right supervision, support and development opportunities are in place.

The role involves working closely with the HD Clinical Lead (a Senior NHS employed doctor such as psychiatrist, neurologist or geneticist) in addition to our Services Team Lead and the Deputy Chief Executive/Head of Services to manage and develop the service.

Working in partnership with local Health and Social Care teams, you will also provide advice, training and education to professionals and voluntary agencies involved in all aspects of Huntington’s disease care in Greater Glasgow & Clyde.

The successful candidate will be enthusiastic and motivated to have a positive influence on the quality of life of the individuals and families they support. This role is open to medical and health and social care staff from backgrounds such as nursing, allied health, social work and medicine. Professional body membership is essential. Previous experience of Huntington’s disease is advantageous but not essential as full training will be provided.

You should be able to work autonomously in this challenging and rewarding position. Good listening, communication and interpersonal skills are vital, as are excellent time keeping and caseload management abilities. Community-based practice knowledge, a driving licence and use of a car is also essential. The successful candidate will be subject to an enhanced disclosure check.

About Scottish Huntington’s Association

People impacted by Huntington’s disease need specialist services to cope with a severe and complex disease, the impact on families and a lack of awareness amongst health and social care providers and the wider public.

Scottish Huntington’s Association is the only charity in the country exclusively dedicated to providing expert and personalised support for those impacted by Huntington’s disease.

Our support reduces unnecessary hospital admissions; supports carers and other family members; lowers household poverty; and alleviates wellbeing risks to children and young people living in Huntington’s families.

We are commissioned by NHS Boards and Health and Social Care Partnerships throughout the country to share our expertise with front line staff and build support for improved services and higher standards of care for every family impacted by this devastating disease.

About Huntington’s disease

Huntington’s disease is caused by an inherited faulty gene that damages the brain over time. People with the disease can eventually lose the ability to walk, talk, eat, drink and care for themselves, requiring specialist support from those who understand the condition.

The disease is genetic, meaning it is passed down from one generation to the next. It therefore impacts entire families over generations rather than individuals alone. Anyone with a parent who has Huntington’s has a 50% risk of inheriting the condition from them.

Around 800 people in Scotland are living with the symptoms of Huntington’s disease right now. A further 3,200 are estimated to be at risk of developing Huntington’s disease as a result of inheriting the faulty gene.

At Scottish Huntington’s Association we are entering the second year of Standing Tall: A Strategy For Growth 2023 – 28, designed to transform the care and support of Huntington’s families. The launch of our strategy followed two years of expansion in specialist teams, increased funding, a rise in media engagement, and growth in parliamentary support for our work.

You will find a values-driven organisation, founded by families for families and recognised at national and international levels for expertise in supporting the Huntington’s disease community.

Scottish Huntington’s Association is committed to promoting equal opportunities in employment.