Are you looking for a role in which you will improve the lives of families in your community? A role that enables you to work differently, build your knowledge and skills and feel valued by clients, colleagues and the organisation you work for?

It’s an exciting time to be part of Scottish Huntington’s Association with the launch of Standing Tall: A Strategy For Growth 2023 – 28 to transform the care and support of Huntington’s families, expand services, raise awareness and deepen our involvement and support for world-leading research and clinical trials.

We are looking for a Health and Social Care professional to join our nationwide network of Huntington’s Disease Specialists to provide care management, specialist assessment and emotional support to individuals and families across Scotland.

Working in partnership with local Health and Social Care teams, you will also provide advice, training and education to professionals and voluntary agencies involved in all aspects of Huntington’s disease care.

The successful candidate will be enthusiastic and motivated to have a positive influence on the quality of life of the individuals and families they support. This role is open to medical and health and social care staff from backgrounds such as nursing, allied Health, social work and medicine. Professional body membership is essential. Previous experience of Huntington’s disease is advantageous but not essential as full training will be provided.

You should be able to work autonomously in this challenging and rewarding position. Good listening, communication and interpersonal skills are vital, as are excellent time keeping and caseload management abilities. Community-based practice knowledge, a driving licence and use of a car complete our list of essential criteria. The successful candidate will be subject to an enhanced disclosure check.

About Scottish Huntington’s Association

People impacted by Huntington’s disease need specialist services to cope with a severe and complex disease, the impact on families and a lack of awareness amongst health and social care providers and the wider public.

Scottish Huntington’s Association is the only charity in the country exclusively dedicated to providing expert and personalised support for those impacted by Huntington’s disease.

Our support reduces unnecessary hospital admissions; supports carers and other family members; lowers household poverty; and alleviates wellbeing risks to children and young people living in Huntington’s families.

Scottish Huntington’s Association is the only charity in Scotland dedicated exclusively to the care and support of individuals and families whose lives are impacted by Huntington’s disease. As such, we are commissioned by NHS Boards and Health and Social Care Partnerships throughout the country to share our expertise with front line staff and build support for improved services and higher standards of care for every family impacted by this devastating disease.

It’s an exciting time to join us as we implement Standing Tall: A Strategy For Growth 2023 – 28 to transform the care and support of Huntington’s families, expand services, raise awareness and deepen our involvement and support for world-leading research and clinical trials.

You will find a values-driven organisation, founded by families for families and recognised at national and international levels for expertise in supporting the Huntington’s disease community.

About Huntington’s disease

Huntington’s disease is caused by an inherited faulty gene that damages the brain over time. People with the disease can eventually lose the ability to walk, talk, eat, drink and care for themselves, requiring specialist support from those who understand the condition.

The disease is genetic, meaning it is passed down from one generation to the next. It therefore impacts entire families over generations rather than individuals alone. Anyone with a parent who has Huntington’s has a 50% risk of inheriting the condition from them.

Around 800 people in Scotland are living with the symptoms of Huntington’s disease right now. A further 3,200 are estimated to be at risk of developing Huntington’s disease as a result of inheriting the faulty gene.

By joining Scottish Huntington’s Association (SHA) as a Community and Events Fundraising Officer you can play a full and active role in securing income to improve the lives of families impacted by Huntington’s disease.

Scottish Huntington’s Association is the only charity in the country exclusively dedicated to providing expert and personalised support for those impacted by Huntington’s disease when they need it, regardless of where they live.

Organised, motivated and a confident communicator, you’ll be responsible for driving income and building relationships throughout the East Coast of Scotland, to ensure we have the funds needed to deliver our specialist services for every family impacted by this devastating disease. We welcome applicants from a variety of backgrounds including (but not limited to) account management, marketing, fundraising, event management, or sales, and candidates who are based in any of the following areas: Aberdeenshire, Dundee and Angus, Edinburgh and the Lothians, Fife or Perthshire.

From supporter stewardship, event management, delivering inspiring presentations, and managing volunteers, no week will be the same. The Community and Events Fundraising Officer (East Coast of Scotland) will be joining a hard-working and talented fundraising team, working closely with our Senior Community, Event & Individual Giving Fundraising Officer, Community and Events Fundraising Officer (West Coast of Scotland), our SHA Communications team, as well as the wider SHA team.

We are looking for an engaging, passionate and tenacious person who can deliver strong, cost effective and sustainable income growth for the charity, along with good copy writing, admin and organisational skills, experienced at developing relationships, and can manage a busy and varied workload. This is a chance for you to channel your varied skills, qualities, and passion for relationship building to improve the lives of families impacted by Huntington’s disease in Scotland.

In line with our commitment to safeguarding, this role is subject to a Basic Disclosure check. SHA is committed to equality of opportunity and to providing a service that is free from unfair and unlawful discrimination. We therefore aim to ensure that no applicant, volunteer, or member of staff is unfairly treated on the grounds of offending background.

You will work from home with periodic travel throughout the East Coast of Scotland. There will also be occasional travel required for organisation-wide meetings.

This role will require occasional weekend and evening working for which time off in lieu will be agreed.

In addition to a competitive salary, we offer benefits including flexible working practices, and a generous leave allowance totalling 37 days (25 days Annual leave and 12 days public holidays). Upon 5 completed years of service, you will receive an extra day for each completed year up to a maximum of 5 days, and the the opportunity to opt into our competitive pension scheme.

This is an exciting time for the charity, now in the second year of Standing Tall: A Strategy For Growth 2023 - 2028 to transform the care and support of Huntington’s families, expand specialist services and deepen involvement in research and clinical trials.

About Scottish Huntington’s Association

People impacted by Huntington’s disease need specialist services to cope with a severe and complex disease, its impact on families, and a lack of awareness amongst health and social care providers and the wider public.

Scottish Huntington’s Association is the only charity in the country exclusively dedicated to providing expert and personalised support for those impacted by Huntington’s disease.

Our personalised support reduces unnecessary hospital admissions, supports carers and other family members; lowers household poverty; and alleviates wellbeing risks to children and young people living in Huntington’s families.

We are commissioned by NHS Boards and Health and Social Care Partnerships throughout the country to share our expertise with front-line staff and build support for improved services and higher standards of care for every family impacted by this devastating disease. Scottish Huntington’s Association plays a full and active role in attracting the global research community to Scotland to work in partnership with us to improve the lives of families impacted by Huntington’s disease.

If you wish to apply to join a values-driven organisation, founded by families for families and recognised at national and international levels for its expertise and support delivered through a nationwide network of Huntington’s Disease Specialists, Specialist Youth Advisors, and Financial Wellbeing Officers, please follow the application notes below.

Reporting to: Deputy Chief Executive and Head of Services

What we offer

• Generous annual leave entitlement (37 days – 25 days annual leave plus 12 days public holidays)
• Increasing annual leave days to recognise long service (after 4 years)
• Contribution pension scheme
• Flexible hybrid approach to work
• Regular supervision

An exciting opportunity has arisen for the right candidate to develop and manage our recently restructured Financial Wellbeing Service.

We are looking for a dynamic and strategic person to implement and take forward our newly reviewed Financial Wellbeing Service.

This is a role in which you will help to improve the lives of families across Scotland. One that enables you to share your expertise, build new skills and feel valued by colleagues, clients and the organisation you work for.

At Scottish Huntington’s Association we are entering the second year of Standing Tall: A Strategy For Growth 2023 – 28, designed to transform the care and support of Huntington’s families. The launch of our strategy followed two years of expansion in specialist teams, increased funding, a rise in media engagement, and growth in parliamentary support for our work.

You will be enthusiastic, motivated and take great pride in the work you do. With significant experience in delivering advice services and strong people management skills, you will lead our new team to deliver welfare rights, money and future planning advice to families impacted by

Huntington’s disease in Scotland. By working in partnership with our Head of Services and the Extended Leadership Team, you will be key to the delivery of a new and sustainable Financial Wellbeing Service.

About Scottish Huntington’s Association

People impacted by Huntington’s disease need specialist services to cope with a severe and complex disease, the impact on families and a lack of awareness amongst health and social care providers and the wider public.

Scottish Huntington’s Association is the only charity in the country exclusively dedicated to providing expert and personalised support for those impacted by Huntington’s disease.

Our support reduces unnecessary hospital admissions; supports carers and other family members; lowers household poverty; and alleviates wellbeing risks to children and young people living in Huntington’s families.

We are commissioned by NHS Boards and Health and Social Care Partnerships throughout the country to share our expertise with front line staff and build support for improved services and higher standards of care for every family impacted by this devastating disease.

About Huntington’s disease

Huntington’s disease is caused by an inherited faulty gene that damages the brain over time. People with the disease can eventually lose the ability to walk, talk, eat, drink and care for themselves, requiring specialist support from those who understand the condition.

The disease is genetic, meaning it is passed down from one generation to the next. It therefore impacts entire families over generations rather than individuals alone. Anyone with a parent who has Huntington’s has a 50% risk of inheriting the condition from them.

Around 800 people in Scotland are living with the symptoms of Huntington’s disease right now. A further 3,200 are estimated to be at risk of developing Huntington’s disease as a result of inheriting the faulty gene.

If you wish to apply to join a values-driven organisation, founded by families for families and recognised at national and international levels for its expertise and support delivered through a nationwide network of Huntington’s Disease Specialists, Specialist Youth Advisors, and Financial Wellbeing Officers, please follow the application notes below.

Scottish Huntington’s Association is committed to promoting equal opportunities in employment.