By joining Scottish Huntington’s Association (SHA) as a Community and Events Fundraising Officer you can play a full and active role in securing income to improve the lives of families impacted by Huntington’s disease.

Scottish Huntington’s Association is the only charity in the country exclusively dedicated to providing expert and personalised support for those impacted by Huntington’s disease when they need it, regardless of where they live.

Organised, motivated and a confident communicator, you’ll be responsible for driving income and building relationships throughout the East Coast of Scotland, to ensure we have the funds needed to deliver our specialist services for every family impacted by this devastating disease. We welcome applicants from a variety of backgrounds including (but not limited to) account management, marketing, fundraising, event management, or sales, and candidates who are based in any of the following areas: Aberdeenshire, Dundee and Angus, Edinburgh and the Lothians, Fife or Perthshire.

From supporter stewardship, event management, delivering inspiring presentations, and managing volunteers, no week will be the same. The Community and Events Fundraising Officer (East Coast of Scotland) will be joining a hard-working and talented fundraising team, working closely with our Senior Community, Event & Individual Giving Fundraising Officer, Community and Events Fundraising Officer (West Coast of Scotland), our SHA Communications team, as well as the wider SHA team.

We are looking for an engaging, passionate and tenacious person who can deliver strong, cost effective and sustainable income growth for the charity, along with good copy writing, admin and organisational skills, experienced at developing relationships, and can manage a busy and varied workload. This is a chance for you to channel your varied skills, qualities, and passion for relationship building to improve the lives of families impacted by Huntington’s disease in Scotland.

In line with our commitment to safeguarding, this role is subject to a Basic Disclosure check. SHA is committed to equality of opportunity and to providing a service that is free from unfair and unlawful discrimination. We therefore aim to ensure that no applicant, volunteer, or member of staff is unfairly treated on the grounds of offending background.

You will work from home with periodic travel throughout the East Coast of Scotland. There will also be occasional travel required for organisation-wide meetings.

This role will require occasional weekend and evening working for which time off in lieu will be agreed.

In addition to a competitive salary, we offer benefits including flexible working practices, and a generous leave allowance totalling 37 days (25 days Annual leave and 12 days public holidays). Upon 5 completed years of service, you will receive an extra day for each completed year up to a maximum of 5 days, and the the opportunity to opt into our competitive pension scheme.

This is an exciting time for the charity, now in the second year of Standing Tall: A Strategy For Growth 2023 - 2028 to transform the care and support of Huntington’s families, expand specialist services and deepen involvement in research and clinical trials.

About Scottish Huntington’s Association

People impacted by Huntington’s disease need specialist services to cope with a severe and complex disease, its impact on families, and a lack of awareness amongst health and social care providers and the wider public.

Scottish Huntington’s Association is the only charity in the country exclusively dedicated to providing expert and personalised support for those impacted by Huntington’s disease.

Our personalised support reduces unnecessary hospital admissions, supports carers and other family members; lowers household poverty; and alleviates wellbeing risks to children and young people living in Huntington’s families.

We are commissioned by NHS Boards and Health and Social Care Partnerships throughout the country to share our expertise with front-line staff and build support for improved services and higher standards of care for every family impacted by this devastating disease. Scottish Huntington’s Association plays a full and active role in attracting the global research community to Scotland to work in partnership with us to improve the lives of families impacted by Huntington’s disease.

If you wish to apply to join a values-driven organisation, founded by families for families and recognised at national and international levels for its expertise and support delivered through a nationwide network of Huntington’s Disease Specialists, Specialist Youth Advisors, and Financial Wellbeing Officers, please follow the application notes below.

“I recently joined the CHAS Family Support Team from a Local Authority role. It has been a great move! At CHAS, I have a capped caseload, allowing me to spend quality time getting to know families and understanding how I can help them access the specialist support they need. I have the flexibility to manage my own time and achieve a better work-life balance.” — Claire Wilson, Family Support Team Leader

An exciting opportunity has arisen for a Social Worker to join the multi-disciplinary Family Support Team in the east of Scotland, based in Aberdeen.

Role Overview:

This position offers a unique chance to work alongside a highly motivated and skilled outreach team and in partnership with local services dedicated to providing care and support for babies, children, young people, and their families. You will play a key role in providing a comprehensive social work service to babies, children or young people with life-limiting conditions and their families, focusing on the co-ordination, development and delivery of service provision designed to assist with the issues related to the child or young person’s condition and the impact it has upon the wider family.

Why Join Us?

• Holistic, Person-Centered Care: Our teams provide exceptional, individualized care to children and families.

• Collaborative Environment: Work within a multidisciplinary team combining health, social, and medical expertise.

• Manageable Caseload: Benefit from a capped, manageable caseload.

• Flexible Working: Enjoy a hybrid work environment. This role will involve onsite and home working and we are happy to discuss flexible working arrangements.

• Skill Development: Gain experience in various settings, including our CHAS at Home Aberdeen Office, family homes and within the hospital working alongside our Diana nurses,

• Supportive Culture: Be part of a supportive environment that encourages continuous learning and expertise development.

• Pension Scheme: Membership in the Local Government Pension Scheme (LGPS), administered by Lothian Pension Fund.

About You: We are looking for candidates who have:

• A degree or diploma in social work and registration with the SSSC.

• Relevant post-registration experience working with children, young people and complex family situations where loss and change are prevalent

• Highly developed communication and negotiation skills with the ability to adapt support to meet individual family needs.

• The ability to work autonomously in a varied role.

*Aberdeen, time will be split between the CHAS at Home Aberdeen office, an office within the Hospital working alongside our Diana nurses, in Family homes and working remotely.

Supporting the local community and individuals in Royston, NE Glasgow through the provision of food education alongside improved access to community pantry, fruit and vegetables, and opportunities to take part in food growing activities. Using community development approaches, develop and maintain local food hub group activities aimed at reducing the impacts of food poverty, improving health and wellbeing and encouraging community led responses. Funded by The National Lottery Cost of Living Fund.