Charity registered in Scotland SC010985
Scottish Huntington’s Association (SHA) is a Scottish charity that was established by families living with Huntington’s disease (HD) in the late 1980s. Experiencing directly the dearth of services available to them, the organisation pursued the goal of setting up specialist family support services and this ultimately blossomed into the development of an extensive network of specialist services.
Top job! Senior Huntington’s Disease Specialist (Greater Glasgow & Clyde)
- Full time or Part time
- £37,103 – £40,389
- Hybrid: Paisley
- Closing 12th July 2024
What we offer
- Generous annual leave entitlement (37 days - 25 days annual leave plus 12 days public holidays)
- Increasing annual leave days to recognise long service (after 4 years)
- Contribution pension scheme
- Flexible hybrid approach to work
- Regular supervision
Are you looking for a role in which you will improve the lives of families in your community? A role that enables you to work differently, build your knowledge and skills and feel valued by clients, colleagues and the organisation you work for?
We are looking for a Health and Social Care professional with line management experience to lead our Greater Glasgow & Clyde Specialist Service, part of our nationwide network providing care management, specialist assessment and emotional support to individuals and families.
In addition to managing your own client case load, you will line manage a team of HD Specialists and an Admin/Resource Worker, ensuring the right supervision, support and development opportunities are in place.
The role involves working closely with the HD Clinical Lead (a Senior NHS employed doctor such as psychiatrist, neurologist or geneticist) in addition to our Services Team Lead and the Deputy Chief Executive/Head of Services to manage and develop the service.
Working in partnership with local Health and Social Care teams, you will also provide advice, training and education to professionals and voluntary agencies involved in all aspects of Huntington’s disease care in Greater Glasgow & Clyde.
The successful candidate will be enthusiastic and motivated to have a positive influence on the quality of life of the individuals and families they support. This role is open to medical and health and social care staff from backgrounds such as nursing, allied health, social work and medicine. Professional body membership is essential. Previous experience of Huntington’s disease is advantageous but not essential as full training will be provided.
You should be able to work autonomously in this challenging and rewarding position. Good listening, communication and interpersonal skills are vital, as are excellent time keeping and caseload management abilities. Community-based practice knowledge, a driving licence and use of a car is also essential. The successful candidate will be subject to an enhanced disclosure check.
About Scottish Huntington’s Association
People impacted by Huntington’s disease need specialist services to cope with a severe and complex disease, the impact on families and a lack of awareness amongst health and social care providers and the wider public.
Scottish Huntington’s Association is the only charity in the country exclusively dedicated to providing expert and personalised support for those impacted by Huntington’s disease.
Our support reduces unnecessary hospital admissions; supports carers and other family members; lowers household poverty; and alleviates wellbeing risks to children and young people living in Huntington’s families.
We are commissioned by NHS Boards and Health and Social Care Partnerships throughout the country to share our expertise with front line staff and build support for improved services and higher standards of care for every family impacted by this devastating disease.
About Huntington’s disease
Huntington’s disease is caused by an inherited faulty gene that damages the brain over time. People with the disease can eventually lose the ability to walk, talk, eat, drink and care for themselves, requiring specialist support from those who understand the condition.
The disease is genetic, meaning it is passed down from one generation to the next. It therefore impacts entire families over generations rather than individuals alone. Anyone with a parent who has Huntington’s has a 50% risk of inheriting the condition from them.
Around 800 people in Scotland are living with the symptoms of Huntington’s disease right now. A further 3,200 are estimated to be at risk of developing Huntington’s disease as a result of inheriting the faulty gene.
At Scottish Huntington’s Association we are entering the second year of Standing Tall: A Strategy For Growth 2023 – 28, designed to transform the care and support of Huntington’s families. The launch of our strategy followed two years of expansion in specialist teams, increased funding, a rise in media engagement, and growth in parliamentary support for our work.
You will find a values-driven organisation, founded by families for families and recognised at national and international levels for expertise in supporting the Huntington’s disease community.
Scottish Huntington’s Association is committed to promoting equal opportunities in employment.
Admin/Resource Worker
- Part time
- £22,618 pro-rata
- Hybrid: The successful applicant must be able to travel to Hunter Health Centre, East Kilbride.
- Closing 4th July 2024
What we offer
Generous annual leave entitlement (37 days – 25 days annual leave plus 12 days public holidays (pro rata)
Contribution pension scheme
Flexible hybrid approach to work
About the role
Are you looking for a role in which you will help to improve the lives of families in your community and beyond? One that encourages you to share your expertise, build new skills and feel valued by colleagues, clients and the organisation you work for?
We are looking for a part-time Admin/Resource Worker to join our Lanarkshire service.
Providing support to the Huntington’s Disease Specialist team, the part-time Admin/Resource Worker has a key role to play in the specialist team which provides care management, specialist assessment and emotional support to individuals and their families throughout Lanarkshire.
The service works in partnership with, and provides training and education to, local Health and Social Care teams in addition to professionals and voluntary agencies involved in all aspects of Huntington’s disease care.
We invite applications from candidates with administration experience and excellent communication, IT and interpersonal skills. You will be competent in using databases and spreadsheets and have a working knowledge of NHS IT applications and audio typing. You will also be able to carry out basic budgetary tasks, manage the HD Specialist Service diary and take minutes of meetings.
We are looking for someone who is enthusiastic, motivated and takes great pride in the work they do.
This is an exciting time to join Scottish Huntington’s Association as we enter the second year of of Standing Tall: A Strategy For Growth 2023 – 28 to transform the care and support of Huntington’s families. The launch of our five-year strategy followed two years of expansion in specialist teams, increased funding, a rise in media engagement and growth in parliamentary support for our work.
Please note: Hybrid working means many of our staff work partially from home however it is expected that the post holder will travel to the office based in Hunter Health Centre in East Kilbride as required during their work week.
About Scottish Huntington’s Association
People impacted by Huntington’s disease need specialist services to cope with a severe and complex disease, the impact on families and a lack of awareness amongst health and social care providers and the wider public.
Scottish Huntington’s Association is the only charity in the country exclusively dedicated to providing expert and personalised support for those impacted by Huntington’s disease.
Our personalised support reduces unnecessary hospital admissions, supports carers and other family members; lowers household poverty; and alleviates wellbeing risks to children and young people living in Huntington’s families.
We are commissioned by NHS Boards and Health and Social Care Partnerships throughout the country to share our expertise with front line staff and build support for improved services and higher standards of care for every family impacted by this devastating disease.
About Huntington’s disease
Huntington’s disease is caused by an inherited faulty gene that damages the brain over time. People with the disease can eventually lose the ability to walk, talk, eat, drink and care for themselves, requiring specialist support from those who understand the condition.
The disease is genetic, meaning it is passed down from one generation to the next. It therefore impacts entire families over generations rather than individuals alone. Anyone with a parent who has Huntington’s has a 50% risk of inheriting the condition from them.
Around 800 people in Scotland are living with the symptoms of Huntington’s disease right now. A further 3,200 are estimated to be at risk of developing Huntington’s disease as a result of inheriting the faulty gene.
Financial Wellbeing Service Lead
- Full time
- £33,537 – £36,077
- Hybrid: Paisley with travel throughout Scotland as required.
- Closing 14th July 2024
Reporting to: Deputy Chief Executive and Head of Services
What we offer
- Generous annual leave entitlement (37 days – 25 days annual leave plus 12 days public holidays)
- Increasing annual leave days to recognise long service (after 4 years)
- Contribution pension scheme
- Flexible hybrid approach to work
- Regular supervision
An exciting opportunity has arisen for the right candidate to develop and manage our recently restructured Financial Wellbeing Service.
We are looking for a dynamic and strategic person to implement and take forward our newly reviewed Financial Wellbeing Service.
This is a role in which you will help to improve the lives of families across Scotland. One that enables you to share your expertise, build new skills and feel valued by colleagues, clients and the organisation you work for.
At Scottish Huntington’s Association we are entering the second year of Standing Tall: A Strategy For Growth 2023 – 28, designed to transform the care and support of Huntington’s families. The launch of our strategy followed two years of expansion in specialist teams, increased funding, a rise in media engagement, and growth in parliamentary support for our work.
You will be enthusiastic, motivated and take great pride in the work you do. With significant experience in delivering advice services and strong people management skills, you will lead our new team to deliver welfare rights, money and future planning advice to families impacted by
Huntington’s disease in Scotland. By working in partnership with our Head of Services and the Extended Leadership Team, you will be key to the delivery of a new and sustainable Financial Wellbeing Service.
About Scottish Huntington’s Association
People impacted by Huntington’s disease need specialist services to cope with a severe and complex disease, the impact on families and a lack of awareness amongst health and social care providers and the wider public.
Scottish Huntington’s Association is the only charity in the country exclusively dedicated to providing expert and personalised support for those impacted by Huntington’s disease.
Our support reduces unnecessary hospital admissions; supports carers and other family members; lowers household poverty; and alleviates wellbeing risks to children and young people living in Huntington’s families.
We are commissioned by NHS Boards and Health and Social Care Partnerships throughout the country to share our expertise with front line staff and build support for improved services and higher standards of care for every family impacted by this devastating disease.
About Huntington’s disease
Huntington’s disease is caused by an inherited faulty gene that damages the brain over time. People with the disease can eventually lose the ability to walk, talk, eat, drink and care for themselves, requiring specialist support from those who understand the condition.
The disease is genetic, meaning it is passed down from one generation to the next. It therefore impacts entire families over generations rather than individuals alone. Anyone with a parent who has Huntington’s has a 50% risk of inheriting the condition from them.
Around 800 people in Scotland are living with the symptoms of Huntington’s disease right now. A further 3,200 are estimated to be at risk of developing Huntington’s disease as a result of inheriting the faulty gene.
If you wish to apply to join a values-driven organisation, founded by families for families and recognised at national and international levels for its expertise and support delivered through a nationwide network of Huntington’s Disease Specialists, Specialist Youth Advisors, and Financial Wellbeing Officers, please follow the application notes below.
Scottish Huntington’s Association is committed to promoting equal opportunities in employment.
Financial Wellbeing Officer
- Full time
- £32,584
- Hybrid: Hybrid working model (office and home-based), successful applicant must be able to travel throughout Scotland as required.
- Closing 18th July 2024
What we offer
• Generous annual leave entitlement
• Increasing annual leave days to recognise long service (after 5 years)
• Contribution pension scheme
• A flexible hybrid approach to work
• Regular supervision
An exciting opportunity has arisen to join our recently restructured Financial Wellbeing Service.
Are you looking for a role in which you will help to improve the lives of families across Scotland? One that encourages you to share your expertise, build new skills and feel valued by colleagues, clients and the organisation you work for?
We are looking for an experienced Financial Wellbeing Officer to help ensure families impacted by Huntington’s disease have support and advice to access their rights and entitlements.
We are looking for someone who is enthusiastic, motivated and takes great pride in the work they do. With experience working in advice services to deliver welfare rights, money advice and future planning services to families impacted by Huntington’s disease in Scotland. You will work with the Financial Wellbeing Service Lead in addition to our HD Specialists and Specialist Youth Advisors.
This is an exciting time to join Scottish Huntington’s Association as we implement the second year of Standing Tall: A Strategy For Growth 2023 - 28 to transform the care and support of Huntington’s families. It aims to build on two years of expansion in specialist teams, increased funding, a rise in media engagement, growth in parliamentary support for our work, and the success of our ground-breaking Dance 100 event.
About Scottish Huntington’s Association
People impacted by Huntington’s disease need specialist services to cope with a severe and complex disease, the impact on families and a lack of awareness amongst health and social care providers and the wider public.
Scottish Huntington’s Association is the only charity in the country exclusively dedicated to providing expert and personalised support for those impacted by Huntington’s disease.
Our personalised support reduces unnecessary hospital admissions, supports carers and other family members; lowers household poverty; and alleviates wellbeing risks to children and young people living in Huntington’s families.
We are commissioned by NHS Boards and Health and Social Care Partnerships throughout the country to share our expertise with front line staff and build support for improved services and higher standards of care for every family impacted by this devastating disease.
About Huntington’s disease
Huntington’s disease is caused by an inherited faulty gene that damages the brain over time. People with the disease can eventually lose the ability to walk, talk, eat, drink and care for themselves, requiring specialist support from those who understand the condition.
The disease is genetic, meaning it is passed down from one generation to the next. It therefore impacts entire families over generations rather than individuals alone. Anyone with a parent who has Huntington’s has a 50% risk of inheriting the condition from them.
Around 800 people in Scotland are living with the symptoms of Huntington’s disease right now. A further 3,200 are estimated to be at risk of developing Huntington’s disease as a result of inheriting the faulty gene.
Huntington’s Disease Specialist
- Full time
- £33,537 – £37,103
- Hybrid: Scottish Huntington's Association, Business First, Burnbrae Road, Paisley
- Closing 18th July 2024
Are you looking for a role in which you will improve the lives of families in your community? A role that enables you to work differently, build your knowledge and skills and feel valued by clients, colleagues and the organisation you work for?
It’s an exciting time to be part of Scottish Huntington’s Association with the launch of Standing Tall: A Strategy For Growth 2023 – 28 to transform the care and support of Huntington’s families, expand services, raise awareness and deepen our involvement and support for world-leading research and clinical trials.
We are looking for a Health and Social Care professional to join our nationwide network of Huntington’s Disease Specialists to provide care management, specialist assessment and emotional support to individuals and families across Scotland.
Working in partnership with local Health and Social Care teams, you will also provide advice, training and education to professionals and voluntary agencies involved in all aspects of Huntington’s disease care.
The successful candidate will be enthusiastic and motivated to have a positive influence on the quality of life of the individuals and families they support. This role is open to medical and health and social care staff from backgrounds such as nursing, allied Health, social work and medicine. Professional body membership is essential. Previous experience of Huntington’s disease is advantageous but not essential as full training will be provided.
You should be able to work autonomously in this challenging and rewarding position. Good listening, communication and interpersonal skills are vital, as are excellent time keeping and caseload management abilities. Community-based practice knowledge, a driving licence and use of a car complete our list of essential criteria. The successful candidate will be subject to an enhanced disclosure check.
About Scottish Huntington’s Association
People impacted by Huntington’s disease need specialist services to cope with a severe and complex disease, the impact on families and a lack of awareness amongst health and social care providers and the wider public.
Scottish Huntington’s Association is the only charity in the country exclusively dedicated to providing expert and personalised support for those impacted by Huntington’s disease.
Our support reduces unnecessary hospital admissions; supports carers and other family members; lowers household poverty; and alleviates wellbeing risks to children and young people living in Huntington’s families.
Scottish Huntington’s Association is the only charity in Scotland dedicated exclusively to the care and support of individuals and families whose lives are impacted by Huntington’s disease. As such, we are commissioned by NHS Boards and Health and Social Care Partnerships throughout the country to share our expertise with front line staff and build support for improved services and higher standards of care for every family impacted by this devastating disease.
It’s an exciting time to join us as we implement Standing Tall: A Strategy For Growth 2023 – 28 to transform the care and support of Huntington’s families, expand services, raise awareness and deepen our involvement and support for world-leading research and clinical trials.
You will find a values-driven organisation, founded by families for families and recognised at national and international levels for expertise in supporting the Huntington’s disease community.
About Huntington’s disease
Huntington’s disease is caused by an inherited faulty gene that damages the brain over time. People with the disease can eventually lose the ability to walk, talk, eat, drink and care for themselves, requiring specialist support from those who understand the condition.
The disease is genetic, meaning it is passed down from one generation to the next. It therefore impacts entire families over generations rather than individuals alone. Anyone with a parent who has Huntington’s has a 50% risk of inheriting the condition from them.
Around 800 people in Scotland are living with the symptoms of Huntington’s disease right now. A further 3,200 are estimated to be at risk of developing Huntington’s disease as a result of inheriting the faulty gene.