We are looking for an experienced Financial Wellbeing Officer to ensure families impacted by Huntington’s Disease
have support and advice to access their rights and entitlements.
Are you looking for a role in which you will help to improve the lives of families across Scotland? One that
encourages you to share your expertise, build new skills and feel valued by colleagues, clients and the
organisation you work for?
This is an exciting time to join Scottish Huntington’s Association as we continue to implement Standing Tall: A Strategy For Growth 2023 - 28 to transform the care and support of Huntington’s
families.
It comes as the charity continues to build support for its essential work in partnership with statutory and other
major funding organisations, a growing army of volunteer fundraisers, and with MPs/MSPs from across all
political parties.
We are looking for someone who is enthusiastic, motivated and takes great pride in the work they do. With experience
working in advice services to deliver welfare rights, money advice and future planning services to families
impacted by Huntington’s Disease in Scotland. You will work with the Financial Wellbeing Service Lead in
addition to our HD Specialists and Specialist Youth Advisors across Scotland.
About Scottish Huntington’s Association
People impacted by Huntington’s disease need specialist services to cope with a severe and complex disease, the
impact on families and a lack of awareness amongst health and social care providers and the wider public.
Scottish Huntington’s Association is the only charity in the country exclusively dedicated to providing expert and
personalised support for those impacted by Huntington’s disease.
Our personalised support reduces unnecessary hospital admissions, supports carers and other family members; lowers
household poverty; and alleviates wellbeing risks to children and young people living in Huntington’s
families.
We are commissioned by NHS Boards and Health and Social Care Partnerships throughout the country to share our
expertise with front line staff and build support for improved services and higher standards of care for every
family impacted by this devastating disease.
About Huntington’s disease
Huntington’s disease is caused by an inherited faulty gene that damages the brain over time. People with the disease
can eventually lose the ability to walk, talk, eat, drink and care for themselves, requiring specialist support
from those who understand the condition.
The disease is genetic, meaning it is passed down from one generation to the next. It therefore impacts entire
families over generations rather than individuals alone. Anyone with a parent who has Huntington’s has a 50%
risk of inheriting the condition from them.
Around 800 people in Scotland are living with the symptoms of Huntington’s disease right now. A further 3,200 are
estimated to be at risk of developing Huntington’s disease as a result of inheriting the faulty gene.
What we offer
- Generous annual leave entitlement
- Increasing annual leave days to recognise long service (after 4 years)
- Contribution pension scheme
- A flexible hybrid approach to work
- Regular supervision