Are you looking for a role in which you will improve the lives of families in your community? A role that enables you to work differently, build your knowledge and skills and feel valued by clients, colleagues and the organisation you work for?

It’s an exciting time to be part of Scottish Huntington’s Association with the launch of Standing Tall: A Strategy For Growth 2023 – 28 to transform the care and support of Huntington’s families, expand services, raise awareness and deepen our involvement and support for world-leading research and clinical trials.

We are looking for a Health and Social Care professional to join our nationwide network of Huntington’s Disease Specialists to provide care management, specialist assessment and emotional support to individuals and families across Scotland.

Working in partnership with local Health and Social Care teams, you will also provide advice, training and education to professionals and voluntary agencies involved in all aspects of Huntington’s disease care.

The successful candidate will be enthusiastic and motivated to have a positive influence on the quality of life of the individuals and families they support. This role is open to medical and health and social care staff from backgrounds such as nursing, allied Health, social work and medicine. Professional body membership is essential. Previous experience of Huntington’s disease is advantageous but not essential as full training will be provided.

You should be able to work autonomously in this challenging and rewarding position. Good listening, communication and interpersonal skills are vital, as are excellent time keeping and caseload management abilities. Community-based practice knowledge, a driving licence and use of a car complete our list of essential criteria. The successful candidate will be subject to an enhanced disclosure check.

About Scottish Huntington’s Association

People impacted by Huntington’s disease need specialist services to cope with a severe and complex disease, the impact on families and a lack of awareness amongst health and social care providers and the wider public.

Scottish Huntington’s Association is the only charity in the country exclusively dedicated to providing expert and personalised support for those impacted by Huntington’s disease.

Our support reduces unnecessary hospital admissions; supports carers and other family members; lowers household poverty; and alleviates wellbeing risks to children and young people living in Huntington’s families.

Scottish Huntington’s Association is the only charity in Scotland dedicated exclusively to the care and support of individuals and families whose lives are impacted by Huntington’s disease. As such, we are commissioned by NHS Boards and Health and Social Care Partnerships throughout the country to share our expertise with front line staff and build support for improved services and higher standards of care for every family impacted by this devastating disease.

It’s an exciting time to join us as we implement Standing Tall: A Strategy For Growth 2023 – 28 to transform the care and support of Huntington’s families, expand services, raise awareness and deepen our involvement and support for world-leading research and clinical trials.

You will find a values-driven organisation, founded by families for families and recognised at national and international levels for expertise in supporting the Huntington’s disease community.

About Huntington’s disease

Huntington’s disease is caused by an inherited faulty gene that damages the brain over time. People with the disease can eventually lose the ability to walk, talk, eat, drink and care for themselves, requiring specialist support from those who understand the condition.

The disease is genetic, meaning it is passed down from one generation to the next. It therefore impacts entire families over generations rather than individuals alone. Anyone with a parent who has Huntington’s has a 50% risk of inheriting the condition from them.

Around 800 people in Scotland are living with the symptoms of Huntington’s disease right now. A further 3,200 are estimated to be at risk of developing Huntington’s disease as a result of inheriting the faulty gene.

What we offer

• Generous annual leave entitlement

• Increasing annual leave days to recognise long service (after 5 years)

• Contribution pension scheme

• A flexible hybrid approach to work

• Regular supervision

An exciting opportunity has arisen to join our recently restructured Financial Wellbeing Service.

Are you looking for a role in which you will help to improve the lives of families across Scotland? One that encourages you to share your expertise, build new skills and feel valued by colleagues, clients and the organisation you work for?

We are looking for an experienced Financial Wellbeing Officer to help ensure families impacted by Huntington’s disease have support and advice to access their rights and entitlements.

We are looking for someone who is enthusiastic, motivated and takes great pride in the work they do. With experience working in advice services to deliver welfare rights, money advice and future planning services to families impacted by Huntington’s disease in Scotland. You will work with the Financial Wellbeing Service Lead in addition to our HD Specialists and Specialist Youth Advisors.

This is an exciting time to join Scottish Huntington’s Association as we implement the second year of Standing Tall: A Strategy For Growth 2023 - 28 to transform the care and support of Huntington’s families. It aims to build on two years of expansion in specialist teams, increased funding, a rise in media engagement, growth in parliamentary support for our work, and the success of our ground-breaking Dance 100 event.

About Scottish Huntington’s Association

People impacted by Huntington’s disease need specialist services to cope with a severe and complex disease, the impact on families and a lack of awareness amongst health and social care providers and the wider public.

Scottish Huntington’s Association is the only charity in the country exclusively dedicated to providing expert and personalised support for those impacted by Huntington’s disease.

Our personalised support reduces unnecessary hospital admissions, supports carers and other family members; lowers household poverty; and alleviates wellbeing risks to children and young people living in Huntington’s families.

We are commissioned by NHS Boards and Health and Social Care Partnerships throughout the country to share our expertise with front line staff and build support for improved services and higher standards of care for every family impacted by this devastating disease.

About Huntington’s disease

Huntington’s disease is caused by an inherited faulty gene that damages the brain over time. People with the disease can eventually lose the ability to walk, talk, eat, drink and care for themselves, requiring specialist support from those who understand the condition.

The disease is genetic, meaning it is passed down from one generation to the next. It therefore impacts entire families over generations rather than individuals alone. Anyone with a parent who has Huntington’s has a 50% risk of inheriting the condition from them.

Around 800 people in Scotland are living with the symptoms of Huntington’s disease right now. A further 3,200 are estimated to be at risk of developing Huntington’s disease as a result of inheriting the faulty gene.

Join our Award-Winning Fundraising Team as a Fundraising Executive within the Philanthropy Team. This is a fantastic opportunity for a motivated and determined individual with a passion for research and problem-solving.

As a Fundraising Executive, you will provide vital support to our Philanthropy team, contributing to the success of our fundraising initiatives by completing high quality research, plans and network maps to deliver outstanding prospect acquisition and intuitive supporter journeys. You will utilise your excellent research skills to support the Philanthropy Team to achieve their strategic goals.

About you

• You will be determined and motivated by problem solving, with the ability to think creatively when faced with obstacles
• Strong analysis and research skills ideally gained within a fundraising environment.
• You will have an understanding of CHAS and the reasons people support us.
• An enthusiasm to get involved in the organisation and delivery of events.
• Proactive approach and the ability to identify opportunities and communicate information to ensure the teams can act upon leads in a timely manner.
• Strong written and verbal communication skills

Why CHAS?

At CHAS, we support families during the toughest of times. We have ambitions to reach every family in Scotland who is living with the heart-breaking prognosis that their child is dying and offer them our care and support to empower them to make the most of the short time they have together. The skill, determination and creative flair of our Fundraising Teams makes this possible.

We offer

• Flexible Working: our teams work flexibly and in a hybrid manner with time split between at home and onsite in Edinburgh and Glasgow.
• Development Opportunities: exposure to a variety of fundraising activities
• Professional Growth: Work with industry leaders in a high-performing team where you will be encouraged and supported to excel and develop your skills.
• Comprehensive Benefits: Including generous annual leave and pension, incremental salary progression, access to Blue Light discounts, and health and wellbeing support.