Scottish Huntington's Association
Scottish Huntington's Association

Charity registered in Scotland SC010985

Scottish Huntington’s Association (SHA) is a Scottish charity that was established by families living with Huntington’s disease (HD) in the late 1980s. Experiencing directly the dearth of services available to them, the organisation pursued the goal of setting up specialist family support services and this ultimately blossomed into the development of an extensive network of specialist services.


Current vacancies

Huntington’s Disease Specialist

  • Full time
  • £31,615 – £34,976
  • Hybrid working model (combination of office/home-based)
  • Closing 4th March 2024

Are you looking for a role in which you will improve the lives of families in your community? A role that enables you to work differently, build your knowledge and skills and feel valued by clients, colleagues and the organisation you work for?

It’s an exciting time to be part of Scottish Huntington’s Association with the launch of Standing Tall: A Strategy For Growth 2023 – 28 to transform the care and support of Huntington’s families, expand services, raise awareness and deepen our involvement and support for world-leading research and clinical trials.

We are looking for a Health and Social Care professional to join our nationwide network of Huntington’s Disease Specialists to provide care management, specialist assessment and emotional support to individuals and families across Scotland.

Working in partnership with local Health and Social Care teams, you will also provide advice, training and education to professionals and voluntary agencies involved in all aspects of Huntington’s disease care.

The successful candidate will be enthusiastic and motivated to have a positive influence on the quality of life of the individuals and families they support. This role is open to medical and health and social care staff from backgrounds such as nursing, allied Health, social work and medicine. Professional body membership is essential. Previous experience of Huntington’s disease is advantageous but not essential as full training will be provided.

You should be able to work autonomously in this challenging and rewarding position. Good listening, communication and interpersonal skills are vital, as are excellent timekeeping and caseload management abilities. Community-based practice knowledge, a driving licence and use of a car complete our list of essential criteria. The successful candidate will be subject to an enhanced disclosure check.

Scottish Huntington’s Association is the only charity in Scotland dedicated exclusively to the care and support of individuals and families whose lives are impacted by Huntington’s disease, an incurable neurological condition with severe and complex physical, mental health and cognitive symptoms.

You will find a values-driven organisation, founded by families for families and recognised at national and international levels for expertise in supporting the Huntington’s disease community.

Shortlist
Closed vacancies
This vacancy has now closed

Financial Wellbeing Service Lead

  • Full time
  • £32,886 – £35,369
  • Hybrid working model (office and home based)
  • Closing 23rd February 2024

Region: South East Scotland or South West Scotland (negotiable)

Are you an experienced financial wellbeing advisor who has a passion to improve the quality of life and experience of those living with a neurological condition? This rewarding role offers the opportunity to work directly with families, share your expertise, and develop your skills while leading a high performing team in support the Huntington’s disease community.

Our Financial Wellbeing Service delivers bespoke advice across a range of money topics to clients living with Huntington’s disease across Scotland and has delivered more than £6million in financial gain for families since 2015.

About the role

We are looking for someone who is enthusiastic and motivated to have a positive influence on the quality of life for individuals and their families impacted by Huntington’s disease (HD) by managing and delivering a high quality financial wellbeing and energy advice service. As Financial Wellbeing Service Lead you will ideally have experience in service management as well as mentoring and supporting others in the advice sector. We expect you to have considerable expertise in delivering advice to vulnerable groups across at least two out of our four main advice areas – welfare rights; debt advice; energy advice; financial planning and products - and be willing to learn in any area where you have less experience. The successful candidate should be able to work flexibly and autonomously using their own initiative. Strong leadership and good listening, communication and interpersonal skills are essential, as are excellent organisation and caseload management. The post holder will have high attention to detail and able to work collaboratively with a wide range of professionals to provide a unique, high quality service to families.

You will play a key role in the mission of Scottish Huntington’s Association as a member of our Extended Leadership Team and work with multiple stakeholders including Huntington’s Disease (HD) Specialists, the Youth Service and other appropriate agencies to deliver an effective service to families impacted by Huntington’s disease. You will be responsible for overseeing the day to day operations of the Financial Wellbeing Service providing leadership, support and supervision to team members, effective management of budgets, co-ordinating with the Income Generation team to provide service information to assist with service funding applications, and liaising with funders where appropriate.

The successful candidate will also have a caseload and work directly with families, delivering a holistic advice service in South East Scotland that provides advice, information and support on a range of money issues; accessing welfare benefits, debt, planning for the future and energy advice.

About us

People impacted by Huntington’s disease need specialist services to cope with a severe and complex disease, the impact on families and a lack of awareness amongst health and social care providers and the wider public.

Scottish Huntington’s Association is the only charity in the country exclusively dedicated to providing expert and personalised support for those impacted by Huntington’s disease.

Our personalised support reduces unnecessary hospital admissions; supports carers and other family members; lowers household poverty; and alleviates wellbeing risks to children and young people living in Huntington’s families.

The successful candidate will join Scottish Huntington’s Association at an exciting time with the launch of Standing Tall: A Strategy for Growth 2023 – 28 to transform the care and support for Huntington’s families throughout Scotland. We are an ambitious and hard-working organisation, recognised at national and international levels for our expertise and approach.

About Huntington’s disease

Huntington’s disease is caused by an inherited faulty gene that damages the brain over time. People with the disease can eventually lose the ability to walk, talk, eat, drink and care for themselves, requiring specialist support from those who understand the condition.

The disease is genetic, meaning it is passed down from one generation to the next. It therefore impacts entire families over generations rather than individuals alone. Anyone with a parent who has Huntington’s has a 50% risk of inheriting the condition from them.

Generally speaking, symptoms begin to develop between the ages of 30 and 50 and can take between 10 and 25 years from starting until the end of life. However, each case of Huntington’s is unique and can vary dramatically both in terms of age of onset, speed of advance and range of symptoms.

Around 800 people in Scotland are living with the symptoms of Huntington’s disease right now. A further 3,200 are estimated to be at risk of developing Huntington’s disease as a result of inheriting the faulty gene.

About you

  • You will have experience in delivering advice in a welfare rights, money advice or energy advice capacity
  • You will demonstrate good leadership qualities and ability to inspire a high performing team
  • You will be confident in influencing decision-making at team and senior levels
  • You will be a skilled communicator with good listening and inter-personal skills
  • You will be enthusiastic and motivated to have a positive influence on the quality of life of the individuals on your caseload
  • You will have a current UK driving licence and access to a car
  • You will have experience of managing the conflicting priorities of a complex caseload
  • You will be able to demonstrate your ability to work autonomously as an integral part of a small team

What we offer

  • Salary of £32,886-£35,369 (Salary band 33-36) per annum
  • Generous 32 days annual leave plus 5 fixed public holidays on appointment
  • Increasing annual leave days to recognise long service (after 5 years)
  • Contribution pension scheme
  • An extended and thorough induction period with ongoing commitment to your training
  • A flexible, hybrid approach to work
  • Regular supervision
  • Attention to facilitating peer support with colleagues throughout Scotland
Shortlist
This vacancy has now closed

Huntington’s Disease Specialist

  • Full time
  • £32,880 – £36,375
  • Scottish Huntington's Association, Whyteman's Brae Hospital, Whyteman’s Brae, Kirkcaldy, KY1 2ND Hybrid working model (combination of office/home-based)
  • Closing 5th February 2024

Are you looking for a role in which you will improve the lives of families in your community? A role that enables you to work differently, build your knowledge and skills and feel valued by clients, colleagues and the organisation you work for?

It’s an exciting time to be part of Scottish Huntington’s Association with the launch of Standing Tall: A Strategy For Growth 2023 – 28 to transform the care and support of Huntington’s families, expand services, raise awareness and deepen our involvement and support for world-leading research and clinical trials.

We are looking for a Health and Social Care professional to join our nationwide network of Huntington’s Disease Specialists to provide care management, specialist assessment and emotional support to individuals and families in Fife.

Working in partnership with local Health and Social Care teams, you will also provide advice, training and education to professionals and voluntary agencies involved in all aspects of Huntington’s disease care.

The successful candidate will be enthusiastic and motivated to have a positive influence on the quality of life of the individuals and families they support. This role is open to medical and health and social care staff from backgrounds such as nursing, allied Health, social work and medicine. Professional body membership is essential. Previous experience of Huntington’s disease is advantageous but not essential as full training will be provided.

You should be able to work autonomously in this challenging and rewarding position. Good listening, communication and interpersonal skills are vital, as are excellent time keeping and caseload management abilities. Community-based practice knowledge, a driving licence and use of a car complete our list of essential criteria. The successful candidate will be subject to an enhanced disclosure check.

Scottish Huntington’s Association is the only charity in Scotland dedicated exclusively to the care and support of individuals and families whose lives are impacted by Huntington’s disease, an incurable neurological condition with severe and complex physical, mental health and cognitive symptoms.

You will find a values-driven organisation, founded by families for families and recognised at national and international levels for expertise in supporting the Huntington’s disease community.

Shortlist
This vacancy has now closed

Specialist Youth Advisor

  • Full time
  • £31,035 – £32,880
  • Home based in south/west Scotland (with extensive travel)
  • Closing 26th January 2024

Are you passionate about working with children and young people? Can you work with families to make a positive change to their lives? Can you provide ongoing, tailored support through one-to-one sessions, group work, residentials and camp?

An exciting opportunity has arisen to join Scottish Huntington’s Association Youth Service as a Specialist Youth Advisor providing support for vulnerable children and families throughout South/West Scotland through bespoke, individual sessions. If you are someone with dedication, talent and expertise, we want to hear from you.

Scottish Huntington’s Association Youth Service works with children and families aged 8-25 impacted by familial Huntington’s disease. To affect positive change for our families, we focus on a person-centred approach to managing Huntington’s disease including psychoeducation, information and advice, peer support and respite opportunities. The Specialist Youth Advisor role is pivotal within the South/West team and will provide a vital link in supporting young people in this region in line with the strategic aims of Scottish Huntington’s Association.

You will be responsible for your own caseload and will help plan and co-ordinate group work sessions, activity days, residentials and our summer camp.

Highly organised with a proven ability to build trusting relationships, you will help to empower children and young people to manage the complexities of living with Huntington’s disease and their own genetic risk. Experience of child and adolescent mental health difficulties, young carers’ issues and child protection is advantageous.

Previous experience or knowledge of Huntington’s disease is preferred, but not required as full training and ongoing mentorship will be provided.

You will work from home with regular travel throughout Ayrshire and Arran, Greater Glasgow and Clyde, Lanarkshire and Dumfries and Galloway. There will also be travel required for organisation-wide meetings.

This post will include out of hours and periodic weekend working. In addition to a competitive salary, we offer benefits including flexible working practices, a generous leave allowance totalling 37 days (25 days Annual leave and 12 days public holidays) and a competitive pension.

This is an exciting time for the charity with the launch of Standing Tall: A Strategy For Growth 2023 - 2028 to transform the care and support of Huntington’s families, expand specialist services and deepen involvement in research and clinical trials.

It follows two years of significant expansion in our specialist teams, growth in funding, a rise in media engagement and parliamentary support for the work we do, and the success of our ground-breaking Dance 100 event in Glasgow.

About Scottish Huntington’s Association

People impacted by Huntington’s disease need specialist services to cope with a severe and complex disease, the impact on families and a lack of awareness amongst health and social care providers and the wider public.

Scottish Huntington’s Association is the only charity in the country exclusively dedicated to providing expert and personalised support for those impacted by Huntington’s disease.

Our personalised support reduces unnecessary hospital admissions, supports carers and other family members; lowers household poverty; and alleviates wellbeing risks to children and young people living in Huntington’s families.

We are commissioned by NHS Boards and Health and Social Care Partnerships throughout the country to share our expertise with front line staff and build support for improved services and higher standards of care for every family impacted by this devastating disease. Scottish Huntington’s Association plays a full and active role in attracting the global research community to Scotland to work in partnership with us to improve the lives of families impacted by Huntington’s disease. At Scottish Huntington’s Association you will find a values-driven organisation, founded by families for families and recognised at national and international levels for its expertise and support. Our services are delivered through a nationwide network of Huntington’s Disease Specialists, Specialist Youth Advisors and Financial Wellbeing Officers. We offer a flexible working environment, contributory pension scheme, generous holiday entitlement, contributory pension, and annual incremental pay increases to top of designated salary scale.

Shortlist
This vacancy has now closed

Community, Corporate and Events Fundraising Officer

  • Full time
  • £26,368 – £29,163
  • Home based in East Coast of Scotland (with travel throughout)
  • Closing 22nd January 2024

By joining Scottish Huntington’s Association (SHA) as a Community, Corporate and Events Fundraising Officer you can play a full and active role in securing income to improve the lives of families impacted by Huntington’s disease.

Scottish Huntington’s Association is the only charity in the country exclusively dedicated to providing expert and personalised support for those impacted by Huntington’s disease when they need it, regardless of where they live.

Organised, motivated and a confident communicator, you’ll be responsible for driving income and building relationships throughout the East Coast of Scotland, to ensure we have the funds needed to deliver our specialist services for every family impacted by this devastating disease. We welcome applicants from a variety of backgrounds including (but not limited to) account management, marketing, fundraising, event management or sales, and candidates who are based in Aberdeenshire, Dundee and Angus, Edinburgh and the Lothians, Fife or Perthshire.

From supporter stewardship, events management, delivering inspiring presentations and managing volunteers, no week will be the same. The Community, Corporate and Events Fundraising Officer (East Coast of Scotland) will be joining a hard-working and talented fundraising team, working closely with our Senior Fundraising Officer, Community, Corporate and Events Fundraising Officer (West Coast of Scotland), our SHA Communications team as well as the wider SHA Income Generation team.

We are looking for an engaging, passionate and tenacious person who can deliver strong, cost effective and sustainable income growth for the charity, along with great copy writing, admin and organisational skills, experienced at developing relationships, and can manage a busy and varied workload. This is a chance for you to channel your varied skills, qualities and passion for relationship building to improve the lives of families impacted by Huntington’s disease in Scotland.

In line with our commitment to safeguarding, this role is subject to a Basic Disclosure check. SHA is committed to equality of opportunity and to providing a service which is free from unfair and unlawful discrimination. We therefore aim to ensure that no applicant, volunteer or member of staff is unfairly treated on the grounds of offending background.

You will work from home with periodic travel throughout the East Coast of Scotland. There will also be occasional travel required for organisation-wide meetings.

This role will require some weekend and evening working for which time off in lieu will be agreed.

In addition to a competitive salary, we offer benefits including flexible working practices, a generous leave allowance totalling 37 days (25 days Annual leave and 12 days public holidays) and a competitive pension.

This is an exciting time for the charity with the launch of Standing Tall: A Strategy For Growth 2023 - 2028 to transform the care and support of Huntington’s families, expand specialist services and deepen involvement in research and clinical trials.

It follows two years of significant expansion in our specialist teams, growth in funding, a rise in media engagement and parliamentary support for the work we do, and the success of our ground-breaking Dance 100 event in Glasgow.

About Scottish Huntington’s Association

People impacted by Huntington’s disease need specialist services to cope with a severe and complex disease, the impact on families and a lack of awareness amongst health and social care providers and the wider public.

Scottish Huntington’s Association is the only charity in the country exclusively dedicated to providing expert and personalised support for those impacted by Huntington’s disease.

Our personalised support reduces unnecessary hospital admissions, supports carers and other family members; lowers household poverty; and alleviates wellbeing risks to children and young people living in Huntington’s families.

We are commissioned by NHS Boards and Health and Social Care Partnerships throughout the country to share our expertise with front line staff and build support for improved services and higher standards of care for every family impacted by this devastating disease. Scottish Huntington’s Association plays a full and active role in attracting the global research community to Scotland to work in partnership with us to improve the lives of families impacted by Huntington’s disease. At Scottish Huntington’s Association you will find a values-driven organisation, founded by families for families and recognised at national and international levels for its expertise and support. Our services are delivered through a nationwide network of Huntington’s Disease Specialists, Specialist Youth Advisors and Financial Wellbeing Officers. We offer a flexible working environment, contributory pension scheme, generous holiday entitlement, contributory pension, and annual incremental pay increases to top of designated salary scale.

If you wish to apply to join a values-driven organisation, founded by families for families and recognised at national and international levels for its expertise and support delivered through a nationwide network of Huntington’s Disease Specialists, Specialist Youth Advisors and Financial Wellbeing Officers, please follow the application notes below.

Shortlist
This vacancy has now closed

Admin/Resource Worker (part-time) Highland

  • Part time
  • £20,528 – £21,070 pro-rata
  • Hybrid working model (office and home-based), successful applicant must be within reasonable travel distance to Raigmore Hospital.
  • Closing 13th November 2023

Are you looking for a role in which you will help to improve the lives of families in your community and beyond? One that encourages you to share your expertise, build new skills and feel valued by colleagues, clients and the organisation you work for?

We are looking for a part-time Admin/Resource Worker to join our Highland service.

This is an exciting time to join Scottish Huntington’s Association with the launch of Standing Tall: A Strategy For Growth 2023 - 28 to transform the care and support of Huntington’s families.

It follows two years of expansion in specialist teams, increased funding, a rise in media engagement, growth in parliamentary support for our work, and the success of our ground-breaking Dance 100 event in Glasgow.

Providing support to the Senior Huntington’s Disease Specialist (SHDS) in our Highland Service, the part-time Admin/Resource Worker has a key role to play in the specialist team which provides care management, specialist assessment and regular emotional support to individuals, and their families, throughout the Highlands. The service works in partnership with, and provides training and education to, local Health and Social Care teams, professionals and voluntary agencies involved in all aspects of Huntington’s disease care.

We invite applications from candidates with administration experience and excellent communication, IT and interpersonal skills. You will be competent in using databases and spreadsheets and have working knowledge of NHS IT applications and audio typing. You will also be able to carry out basic budgetary tasks, manage the Senior HD Specialist diary and take minutes of team meetings.

We are looking for someone who is enthusiastic, motivated and takes great pride in the work they do.

About Scottish Huntington’s Association

People impacted by Huntington’s disease need specialist services to cope with a severe and complex disease, the impact on families and a lack of awareness amongst health and social care providers and the wider public.

Scottish Huntington’s Association is the only charity in the country exclusively dedicated to providing expert and personalised support for those impacted by Huntington’s disease.

Our personalised support reduces unnecessary hospital admissions, supports carers and other family members; lowers household poverty; and alleviates wellbeing risks to children and young people living in Huntington’s families.

We are commissioned by NHS Boards and Health and Social Care Partnerships throughout the country to share our expertise with front line staff and build support for improved services and higher standards of care for every family impacted by this devastating disease.

About Huntington’s disease

Huntington’s disease is caused by an inherited faulty gene that damages the brain over time. People with the disease can eventually lose the ability to walk, talk, eat, drink and care for themselves, requiring specialist support from those who understand the condition.

The disease is genetic, meaning it is passed down from one generation to the next. It therefore impacts entire families over generations rather than individuals alone. Anyone with a parent who has Huntington’s has a 50% risk of inheriting the condition from them.

Around 800 people in Scotland are living with the symptoms of Huntington’s disease right now. A further 3,200 are estimated to be at risk of developing Huntington’s disease as a result of inheriting the faulty gene.

What we offer

• Generous annual leave entitlement

• Increasing annual leave days to recognise long service (after 5 years)

• Contribution pension scheme

• A flexible hybrid approach to work

• Regular supervision

Please note: Hybrid working means a lot of our staff work partially from home however it is expected that the post holder will travel to the office based in Raigmore Hospital as required during their work week.

Shortlist
This vacancy has now closed

Digital Communications Officer

  • Full time
  • £27,205 – £29,163
  • Hybrid working: home and travel to National Office (Paisley) and other locations as required
  • Closing 20th October 2023

Are you looking for a role in which you will help to improve the lives of families across Scotland? One that encourages you to work differently, get creative and feel valued by colleagues and the organisation you work for?

If you are someone with imagination, talent and expertise, we want to hear from you.

It’s an exciting time for the charity with the launch of Standing Tall: A Strategy For Growth 2023 - 2028 to transform the care and support of Huntington’s families, expand specialist services and deepen involvement in research and clinical trials.

This follows two years of significant expansion in our specialist teams, growth in funding, a rise in media engagement and parliamentary support for the work we do, and the success of our ground-breaking Dance 100 event in Glasgow.

Innovative and impactful communications are playing a key role in the delivery of Standing Tall 2023 - 2028 and the appointment of our first Digital Communications Officer will help us to take that vital next step.

Reporting to the Communications Lead, the successful applicant will join an ambitious and hard-working organisation dedicated to families impacted by Huntington’s disease, a devastating hereditary condition that changes the brain and causes severe and complex physical, mental health and cognitive symptoms.

A full Job Description is available for download below.

Shortlist
This vacancy has now closed

Huntington’s Disease Specialist

  • Full time
  • £32,880 – £36,375
  • Longstone Resource Centre
  • Closing 11th September 2023

Are you an experienced health or social care professional who has a passion to improve the quality of life and experience of those living with a neurological condition? Then this challenging and extremely rewarding role offers the opportunity to share your expertise, develop your clinical practice and work with a team of like-minded individuals who support the Huntington’s disease community.

You would join our Lothian Service as a full-time Huntington’s Disease Specialist, in a role funded by Lothian’s Health and Social Care Partnerships.

About the role

Our Huntington’s Disease Specialists facilitate quality care for those impacted by Huntington’s disease and their families throughout the Lothian area. You will focus on case management, specialist assessment, anticipatory care planning, and coordination of support. This requires partnership working with, and signposting to, appropriate professionals/agencies. Previous experience of working with Huntington’s disease is preferred but not essential. We will provide you with all the condition-specific knowledge you need in addition to funding your place on Stirling University’s CPD course ‘Huntington’s Disease: An enabling approach to supporting families’, delivered in collaboration with Scottish Huntington’s Association.

About you

  • You will have an allied health profession, nursing or social work background and current professional body membership
  • You will be a skilled communicator with good listening and inter-personal skills
  • You will be enthusiastic and motivated to have a positive influence on the quality of life of the individuals on your caseload
  • You will have a current UK driving licence and access to a car
  • You will have experience of managing the conflicting priorities of a complex, community-based caseload
  • You will be able to demonstrate your ability to work autonomously as an integral part of a small team

What we offer

  • Salary of up to £36,375 per annum
  • Generous 32 days annual leave plus 5 fixed public holidays on appointment
  • Increasing annual leave days to recognise long service (after 5 years)
  • Contribution pension scheme
  • An extended and thorough induction period with ongoing commitment to your training and CPD opportunities
  • A flexible, hybrid approach to work
  • Regular clinical supervision
  • Attention to facilitating peer support with the HD Specialist team throughout Scotland

About us

People impacted by Huntington’s disease need specialist services to cope with a severe and complex disease, the impact on families and a lack of awareness amongst health and social care providers and the wider public.

Scottish Huntington’s Association is the only charity in the country exclusively dedicated to providing expert and personalised support for those impacted by Huntington’s disease.

Our personalised support reduces unnecessary hospital admissions; supports carers and other family members; lowers household poverty; and alleviates wellbeing risks to children and young people living in Huntington’s families.

The successful candidate will join Scottish Huntington’s Association at an exciting time as we prepare to launch Standing Tall: A Strategy for Growth 2023 – 28 to transform the care and support for Huntington’s families throughout Scotland. We are an ambitious and hard-working organisation, recognised at national and international levels for our expertise and approach.

About Huntington’s disease

Huntington’s disease is caused by an inherited faulty gene that damages the brain over time. People with the disease can eventually lose the ability to walk, talk, eat, drink and care for themselves, requiring specialist support from those who understand the condition.

The disease is genetic, meaning it is passed down from one generation to the next. It therefore impacts entire families over generations rather than individuals alone. Anyone with a parent who has Huntington’s has a 50% risk of inheriting the condition from them.

Generally speaking, symptoms begin to develop between the ages of 30 and 50 and can take between 10 and 25 years from starting until the end of life. However, each case of Huntington’s is unique and can vary dramatically both in terms of age of onset, speed of advance and range of symptoms.

Around 800 people in Scotland are living with the symptoms of Huntington’s disease right now. A further 3,200 are estimated to be at risk of developing Huntington’s disease as a result of inheriting the faulty gene.

For an informal chat about the role, please contact Linda Lucas (Team Leader) or Trevor Law (Senior HD Specialist, Lothian) on 0141 848 0308.

Shortlist
This vacancy has now closed

Admin/Resource Worker (part-time)

  • Part time
  • £20,528 – £21,070 pro-rata
  • Hybrid working model (office and home-based), successful applicant must be within reasonable travel distance to Raigmore Hospital.
  • Closing 12th September 2023

Are you looking for a role in which you will help to improve the lives of families in your community and beyond? One that encourages you to share your expertise, build new skills and feel valued by colleagues, clients and the organisation you work for?

We are looking for a part-time Admin/Resource Worker to join our Highland service.

The successful applicant will join Scottish Huntington’s Association at an exciting time as we prepare to launch our 2023-28 Standing Tall strategy to transform the care and support of Huntington’s families.

This follows two years of expansion in specialist teams, increased funding, a rise in media engagement, growth in parliamentary support for our work, and the success of our ground-breaking Dance 100 event in Glasgow.

Providing support to the Senior Huntington’s Disease Specialist (SHDS) in our Highland Service, the part-time Admin/Resource Worker has a key role to play in the specialist team which provides care management, specialist assessment and regular emotional support to individuals, and their families, throughout the Highlands. The service works in partnership with, and provides training and education to, local Health and Social Care teams, professionals and voluntary agencies involved in all aspects of Huntington’s disease care.

We invite applications with relevant administration experience who have excellent communication, IT and interpersonal skills. The right candidate will be competent in using databases and spreadsheets and working knowledge of NHS IT applications and audio typing. You will be able to carry out basic budgetary tasks, manage Senior HD Specialist diary and take minutes of team meetings.

We are looking for someone who is enthusiastic, motivated and takes great pride in the work they carry out.

Scottish Huntington’s Association(SHA) is an ambitious and hard-working organisation, recognised at national and international levels for its expertise and approach and is the only charity in Scotland dedicated exclusively to families impacted by Huntington’s Disease, a devastating hereditary condition that changes the brain and causes severe and complex physical, mental and cognitive symptoms.

Please note: Hybrid working means a lot of our staff work partially from home however it is expected that the post holder will travel to the office based in Raigmore Hospital as required during their work week.

Shortlist
This vacancy has now closed

Admin/Resource Worker (part-time)

  • Part time
  • £20,528 – £21,070 pro-rata
  • Hybrid working model (office and home-based), location to be determined by location of successful applicant
  • Closing 13th July 2023

Are you looking for a role in which you will help to improve the lives of families in your community and beyond?

One that encourages you to share your expertise, build new skills and feel valued by colleagues, clients and the organisation you work for?

We are looking for a part-time Admin/Resource Worker to join our Highland service.

The successful applicant will join Scottish Huntington’s Association at an exciting time as we prepare to launch our 2023-28 Standing Tall strategy to transform the care and support of Huntington’s families.

This follows two years of expansion in specialist teams, increased funding, a rise in media engagement, growth in parliamentary support for our work, and the success of our ground-breaking Dance 100 event in Glasgow.

Providing support to the Senior Huntington’s Disease Specialist (SHDS) in our Highland Service, the part-time Admin/Resource Worker has a key role to play in the specialist team which provides care management, specialist assessment and regular emotional support to individuals, and their families, throughout the Highlands. The service works in partnership with, and provides training and education to, local Health and Social Care teams, professionals and voluntary agencies involved in all aspects of Huntington’s disease care.

We invite applications from experienced administration workers with excellent communication, IT and interpersonal skills. The right candidate will have a competence of using databases and spreadsheets and working knowledge of NHS IT applications and audio typing. You will be able to carry out basic budgetary tasks, manage HD Specialist diaries and take minutes of team meetings.

We are looking for someone who is enthusiastic, motivated and takes great pride in the work they carry out.

Scottish Huntington’s Association is only charity in Scotland dedicated exclusively to families impacted by Huntington’s disease, a devastating hereditary condition that changes the brain and causes severe and complex physical, mental and cognitive symptoms. You will find an ambitious and hard-working organisation, recognised at national and international levels for its expertise and approach.

Please note: Hybrid working means a lot of our staff work partially from home however it is expected that the post holder will travel to the office in the Highlands as required.

Shortlist
This vacancy has now closed

Administration / Resource Worker

  • Part time
  • £20,528 – £21,070 pro-rata
  • Lanarkshire - Hybrid working model (weekly hours are split between East Kilbride office and home)
  • Closing 23rd June 2023

Are you looking for a role in which you will help to improve the lives of families in your community and beyond? One that encourages you to share your expertise, build new skills and feel valued by colleagues, clients and the organisation you work for?

We are looking for a part-time Admin/Resource Worker to join our Lanarkshire service.

The successful candidate will join Scottish Huntington’s Association at an exciting time as we prepare to launch Standing Tall: A Strategy for Growth 2023 – 28 to transform the care and support available to Huntington’s families.

This follows two years of expansion in specialist teams, increased funding, a rise in media engagement, growth in parliamentary support for our work, and the success of our ground-breaking Dance 100 event in Glasgow.

Providing support to the Senior Huntington’s Disease Specialist (SHDS) in our Lanarkshire Service, the part-time Admin/Resource Worker has a key role to play in the specialist team which provides care management, specialist assessment and regular emotional support to individuals, and their families, throughout Lanarkshire. The service works in partnership with, and provides training and education to, local Health and Social Care teams, professionals and voluntary agencies involved in all aspects of Huntington’s disease care.

We invite applications from experienced administration workers with excellent communication, IT and interpersonal skills. The right candidate will have a competence of using databases and spreadsheets and working knowledge of NHS IT applications and audio typing. You will be able to carry out basic budgetary tasks, manage HD Specialist diaries and take minutes of team meetings.

We are looking for someone who is enthusiastic, motivated and takes great pride in the work they carry out.

Scottish Huntington’s Association is only charity in Scotland dedicated exclusively to families impacted by Huntington’s disease, a devastating hereditary condition that changes the brain and causes severe and complex physical, mental and cognitive symptoms. You will find an ambitious and hard-working organisation, recognised at national and international levels for its expertise and approach.

Please note: Hybrid working enables our staff work partially from home, however it is expected that the post holder will travel to the Lanarkshire office in East Kilbride each week.

For further information or an informal chat about the role please contact Rhona Vernon Smith or Linda Lucas on 0141 848 0308

Shortlist
This vacancy has now closed

Community Fundraising Officer

  • Part time
  • £26,368 – £29,163 pro-rata
  • Hybrid working: home and travel to National Office (Paisley)/other locations as required
  • Closing 27th June 2023

Are you looking for a role in which you will help to improve the lives of families across Scotland? Do you have the skills and determination to meet and exceed fundraising goals alongside your colleagues?

If you are someone with imagination, talent and expertise, we want to hear from you. You will have a proven ability to build trusting relationships and inspire further support towards the charity, as well as good research and record keeping skills.

It’s an exciting time for the charity with the launch of Standing Tall: A Strategy for Growth 2023 – 2028 to transform the care and support of Huntington’s families, expand specialist services and deepen involvement in clinical research and trials.

This follows two years of significant expansion in our specialist teams, growth in funding, a rise in media engagement, majority parliamentary support for our work, and the success of our ground-breaking Dance 100 events in Glasgow.

The Income Generation team is playing a key role in the delivery of our new strategy and our Community Fundraising Officers will enable us to take that vital next step.

The successful applicant will join an ambitious and hard-working organisation dedicated to families living with the challenges of Huntington’s disease, a devastating disease that changes the brain and causes severe and complex physical, mental and cognitive symptoms.

You will find a values-driven organisation, founded by families for families and recognised at national and international levels for its expertise and support delivered through a nationwide network of Huntington’s Disease Specialists, Specialist Youth Advisors and Financial Wellbeing Officers.

Shortlist
This vacancy has now closed

Huntington’s Disease Specialist - Ayrshire & Arran

  • Part time
  • £32,880 – £36,375 pro-rata
  • Hybrid working model-home and office based
  • Closing 12th June 2023

Are you an experienced health or social care professional who has a passion to improve the quality of life and experience of those living with a neurological condition? Then this challenging and extremely rewarding role offers the opportunity to share your expertise, develop your clinical practice and work with a team of

like-minded individuals who support the Huntington’s disease community.

You would join our Ayrshire & Arran Service as a Huntington’s Disease Specialist, in a role funded by NHS Ayrshire & Arran Health and Social Care Partnerships.

About the role

Our Huntington’s Disease Specialists facilitate quality care for those impacted by Huntington’s disease and their families throughout Ayrshire & Arran. You will focus on case management, specialist assessment, anticipatory care planning, and coordination of support. This requires partnership working with, and signposting to, appropriate professionals/agencies. Previous experience of working with Huntington’s disease is desirable, however full training will be provided.

About you

• You will have an allied health profession, nursing or social work background and current professional body membership.

• You will be a skilled communicator with good listening and inter-personal skills.

• You will be enthusiastic and motivated to have a positive influence on the quality of life of the individuals on your caseload.

• You will have a current UK driving licence and access to a car.

• You will have extensive experience of managing the conflicting priorities of a complex, community-based caseload.

• You will be able to demonstrate your ability to work autonomously as an integral part of a small team.

We are open to applicants with a wide range of experience. Applicants who consider themselves to have relevant experience over and above that requested in the Job Description may therefore apply.

About us

Scottish Huntington’s Association is the only charity in Scotland dedicated exclusively to families impacted by Huntington’s disease, a devastating hereditary, neurodegenerative condition that causes severe and complex physical, mental and cognitive symptoms. There are currently 800 people in Scotland with symptoms of Huntington’s disease and a further 3200 believed to be at risk of developing the condition.

The successful candidate will join Scottish Huntington’s Association at an exciting time as we implement Standing Tall: A Strategy for Growth 2023 – 28 to transform the care and support for Huntington’s families throughout Scotland. We are an ambitious and hard-working organisation, recognised at national and international levels for our expertise and approach.

What we offer

• Salary of up to £34,976 per annum (pro rata)

• 18-hour working week

• Generous 32 days annual leave plus 5 fixed public holidays on appointment (pro rata)

• Increasing annual leave days to recognise long service (after 5 years)

• Contribution pension scheme

• An extended and thorough induction period with ongoing commitment to your training and CPD opportunities

• A flexible, hybrid approach to work

• Regular, clinical supervision

• Attention to facilitating peer support with the HD Specialist team throughout Scotland

For an informal chat about the role, please contact Linda Lucas (Team Leader) on 0141 848 0308.

Shortlist
This vacancy has now closed

Huntington's Disease Specialist

  • Full time
  • £32,880 – £36,375
  • Lothian - Home based at present, pending securing new office space Hybrid working model thereafter (office and home based)
  • Closing 12th June 2023

Are you an experienced health or social care professional who has a passion to improve the quality of life and experience of those living with a neurological condition? Then this challenging and extremely rewarding role offers the opportunity to share your expertise, develop your clinical practice and work with a team of

like-minded individuals who support the Huntington’s disease community.

You would join our Lothian Service as a full-time Huntington’s Disease Specialist, in a role funded by Lothian’s Health and Social Care Partnerships.

About the role

Our Huntington’s Disease Specialists facilitate quality care for those impacted by Huntington’s disease and their families throughout the Lothian area. You will focus on case management, specialist assessment, anticipatory care planning, and coordination of support. This requires partnership working with, and signposting to, appropriate professionals/agencies.

Previous experience of working with Huntington’s disease is preferred but not essential. We will provide you with all the condition-specific knowledge you need in addition to funding your place on Stirling University’s CPD course ‘Huntington’s Disease: An enabling approach to supporting families’, delivered in collaboration with Scottish Huntington’s Association.

About you

  • You will have an allied health profession, nursing or social work background and current professional body membership
  • You will be a skilled communicator with good listening and inter-personal skills
  • You will be enthusiastic and motivated to have a positive influence on the quality of life of the individuals on your caseload
  • You will have a current UK driving licence and access to a car
  • You will have experience of managing the conflicting priorities of a complex, community-based caseload
  • You will be able to demonstrate your ability to work autonomously as an integral part of a small team

About us

Scottish Huntington’s Association is the only charity in Scotland dedicated exclusively to families impacted by Huntington’s disease, a devastating hereditary, neurodegenerative condition that causes severe and complex physical, mental and cognitive symptoms. There are currently 800 people in Scotland with symptoms of Huntington’s disease and a further 3200 believed to be at risk of developing the condition.

The successful candidate will join Scottish Huntington’s Association at an exciting time as we prepare to launch Standing Tall: A Strategy for Growth 2023 – 28 to transform the care and support for Huntington’s families throughout Scotland. We are an ambitious and hard-working organisation, recognised at national and international levels for our expertise and approach.

What we offer

  • Salary of up to £34,976 per annum
  • 36-hour working week
  • Generous 32 days annual leave plus 5 fixed public holidays on appointment
  • Increasing annual leave days to recognise long service (after 5 years)
  • Contribution pension scheme
  • An extended and thorough induction period with ongoing commitment to your training and CPD opportunities
  • A flexible, hybrid approach to work
  • Regular, clinical supervision
  • Attention to facilitating peer support with the HD Specialist team throughout Scotland
Shortlist
This vacancy has now closed

Top job! Head of Income Generation and Administration

  • Full time
  • £43,951 – £49,229
  • Paisley, PA1 2FB
  • Closing 31st May 2023

Are you an experienced and talented fundraising professional who is looking to develop their career and play a key leadership role in the continued growth and impact of our organisation?

Scottish Huntington’s Association is the only charity in Scotland dedicated exclusively to the care and support of families whose lives are impacted by Huntington’s disease, an incurable hereditary condition with severe physical, cognitive and mental symptoms. Our expertise is recognised at national and international levels and we work with funders including NHS, Scottish Government and health and social care partnerships across the country.

We seek a Head of Income Generation and Administration with a track record of leading and inspiring teams to maximise organisational income.

You will have experience of leading a Fundraising or Income Generation Team, including coaching, mentoring and support to enable colleagues to achieve individual and team targets.

With a strong knowledge of the charity sector, ideally working within health and social care, you will have the skills to secure and increase funding income from individual giving, community fundraising, corporate giving, trusts and grants, and statutory funding through service level agreements and tenders is a must.

Additionally you will bring strong financial understanding, a good eye for detail and the confidence to play a key role within our leadership team to drive forward change and improvement throughout the organisation and the sector.

It’s an exciting time to join Scottish Huntington’s Association as we prepare to launch Standing Tall: A Strategy for Growth 2023 – 2028 to transform the care of Huntington’s families, expand specialist services and deepen involvement in clinical research and trials.

This follows two years of significant expansion in our specialist teams, growth in funding, a rise in media engagement, majority parliamentary support for our work, and the success of our ground-breaking Dance 100 fundraising event in Glasgow.

Funding for this post is provided by Scottish Huntington’s Association, an ambitious and hard-working organisation with staff who are passionate about the work we do.

Shortlist
This vacancy has now closed

Huntington’s Disease Specialist

  • Full time
  • £31,615 – £34,976
  • Lothian Home based at present, pending securing new office space Hybrid working model thereafter (office and home based)
  • Closing 28th April 2023

Are you looking for a role in which you will contribute to improving the lives of families in your community and beyond? One that encourages you to share your expertise, develop your clinical practice and feel valued by colleagues, clients and the organisation you work for?

We are looking for a full-time Huntington’s Disease Specialist to join our Lothian service. Funding for this post is provided by Lothian’s Health and Social Care Partnerships.

The successful candidate will join Scottish Huntington’s Association at an exciting time as we prepare to launch Standing Tall: A Strategy for Growth 2023 – 28 to transform the care and support available to Huntington’s families.

This follows two years of expansion in specialist teams, increased funding, a rise in media engagement, growth in parliamentary support for our work, and the success of our ground-breaking Dance 100 event in Glasgow.

Our Huntington’s Disease Specialists provide care management, specialist assessment and emotional support to individuals, and their families, throughout the Lothian area. The small team works in partnership with local Health and Social Care teams, and provides advice, training and education to professionals and voluntary agencies involved in all aspects of HD care. We are looking for someone who is enthusiastic, motivated and who will have a positive influence on the quality of life of the individuals on their caseload.

We invite applications from experienced individuals from an allied health professional, nursing or social work background and you must have a current professional body membership. Previous experience of working with Huntington’s disease is preferred, but not essential. We will provide you with all the condition-specific knowledge you need.

The successful candidate should be able to work autonomously in this challenging and innovative post. Good listening, communication and interpersonal skills are vital, as are excellent time keeping and caseload management abilities. Community-based practice knowledge, a current driving licence and the use of a car complete our list of essential criteria. The successful candidate will be subject to an enhanced disclosure check.

Scottish Huntington’s Association is the only charity in Scotland dedicated exclusively to families impacted by Huntington’s disease, a devastating hereditary condition that changes the brain and causes severe and complex physical, mental and cognitive symptoms. You will find an ambitious and hard-working organisation, recognised at national and international levels for its expertise and approach.

Shortlist
This vacancy has now closed

Corporate Fundraising Officer - Scotland-wide

  • Part time
  • £25,354 – £28,042 pro-rata
  • Hybrid working: home and travel to National Office (Paisley)/other locations as required
  • Closing 24th April 2023

Are you looking for a role in which you will help to improve the lives of families across Scotland? Do you have the skills and determination to meet and exceed fundraising goals alongside your colleagues?

If you are someone with imagination, talent and expertise, we want to hear from you. You will have a proven ability to build trusting relationships and inspire further support towards the charity, as well as good research skills and record keeping.

It’s an exciting time for the charity as we prepare to launch Standing Tall: A Strategy for Growth 2023 – 2028 to transform the care and support of Huntington’s families, expand specialist services and deepen involvement in clinical research and trials.

This follows two years of significant expansion in our specialist teams, growth in funding, a rise in media engagement, majority parliamentary support for our work, and the success of our ground-breaking Dance 100 event in Glasgow.

The Income Generation team is playing a key role in the delivery of our new strategy and the appointment of our first Corporate Fundraising Officer will enable us to take that vital next step.

The successful applicant will join an ambitious and hard-working organisation dedicated to families living with the challenges of Huntington’s disease, a devastating disease that changes the brain and causes severe and complex physical, mental and cognitive symptoms.

You will find a values-driven organisation, founded by families for families and recognised at national and international levels for its expertise and support delivered through a nationwide network of Huntington’s Disease Specialists, Specialist Youth Advisors and Financial Wellbeing Officers.

Shortlist
This vacancy has now closed

Senior Finance Officer - Scotland (west)

  • Part time
  • £25,354 – £28,042 pro-rata
  • Hybrid working (National Office, Paisley, and home working)
  • Closing 24th March 2023

Work for Scottish Huntington’s Association (SHA) and you will find an ambitious and hard-working organisation that is recognised at national and international levels for its expertise and impact.

We are looking for an experienced Senior Finance Officer to join our small but busy team based at the charity’s National Office in Paisley. Duties include a range of finance-related processing activities such as income, expenditure, expenses, payroll and pension-related tasks.

With at least two years’ experience in a similar role, you will have a good working knowledge of SAGE Accounts, IRIS payroll and Excel or similar financial software packages.

Training and a full induction programme will be provided, and your part-time 22-25 hour weekly working pattern is negotiable. A laptop will be provided to support hybrid working.

This is an exciting opportunity to share your skills and expertise as part of a unique organisation dedicated to transforming the lives of families in communities across Scotland, including carers and young people.

Scottish Huntington’s Association is only charity in Scotland dedicated exclusively to families impacted by Huntington’s disease, a devastating hereditary condition that changes the brain and causes severe physical, mental and cognitive symptoms.

The successful applicant will join us as we prepare to launch our 2023-28 Standing Tall Strategy for Growth to transform the care and support of families impacted by Huntington’s disease.

This follows two years of expansion in specialist teams, increased funding, a rise in media engagement, growth in parliamentary support for our work, and the success of our ground-breaking Dance 100 event in Glasgow.

Shortlist
This vacancy has now closed

Financial Wellbeing Officer

  • Full time
  • £30,716
  • Hybrid working: home and office (office location to be agreed with successful applicant)
  • Closing 24th February 2023

Are you looking for a role in which you will help to improve the lives of families? One that encourages you to share your expertise, build new skills and feel valued by colleagues, clients and the organisation you work for?

We are looking for a Financial Wellbeing Officer for North Scotland. The successful applicant will join Scottish Huntington’s Association at an exciting time as we prepare to launch our 2023-28 Standing Tall strategy to transform the care and support of Huntington’s families.

This follows two years of significant expansion in specialist teams, growth in funding, a rise in media engagement and parliamentary support for our work, and the success of our ground-breaking Dance 100 event in Glasgow.

Scottish Huntington’s Association is an ambitious and hard-working organisation, recognised at national and international levels for its expertise and approach. It is the only charity in Scotland dedicated exclusively to families impacted by Huntington’s disease, a devastating hereditary condition that changes the brain and causes severe and complex physical, mental and cognitive symptoms.

Purpose of role:

You will work as part of our Financial Wellbeing Service to significantly improve the financial outcomes of families by delivering a holistic advice service. The role involves working directly with vulnerable families in the North of Scotland, providing information, advice and guidance to those referred to the service.

The range of services provided includes advice focusing on four key areas – welfare rights; debt, energy and future planning. You will be expected to have considerable expertise in delivering a high quality service, however additional training will be offered in any areas for which additional experience is required.

You will work in an integrated way with a range of Scottish Huntington’s Association staff including the adult clinical team, youth advisors, volunteers and professional staff from a number of external organisations. You will also provide education and training when appropriate and participate in the development of literature to meet the needs of the families.

The successful candidate should be able to work flexibly and autonomously using their own initiative. Good listening, communication and interpersonal qualities are essential, as is excellent attention to detail in addition to organisational and caseload management skills. The post holder will be also be expected to help promote an awareness of the issues affecting families in the Huntington’s disease community as widely as possible.

Please note: Hybrid working means a lot of our staff are working partially from home. While the post holder will have access to an office base, it is essential that some home working is possible.

Shortlist
This vacancy has now closed

Senior Specialist Support Professional

  • Full time or Part time
  • £34,976 – £38,074
  • Highland region - Hybrid working model (office & home-based). Base will be negotiated depending on location of successful applicant
  • Closing 9th January 2023

Region: Highland Adult Clinical Service – Scottish Huntington’s Association

Base: Hybrid working: home and office (office location to be agreed with successful applicant)

Salary: £34,976 - £38,074 (pro rata)

Hours: One full time post (36 hours) or two part-time posts are available

Are you looking for a role in which you will improve the lives of families in your community? A role that enables you to work differently, build your knowledge and skills and feel valued by clients, colleagues and the organisation you work for?

It’s an exciting time to join Scottish Huntington’s Association with the launch of our 2023-28 Standing Tall strategy to transform the care and support of Huntington’s families, expand services and increase awareness of the disease, and deepen our involvement and support for world-leading research and clinical trials.

We are looking for a specialist support professional to join our nationwide network of Huntington’s Disease Specialists. As the Senior Huntington’s Disease Specialist for Highland you will provide care management, specialist assessment and emotional support to individuals and families.

Working in partnership with local Health and Social Care teams, and with the support of the North of Scotland Genetics Service, the Senior HD Specialist for Highland will also provide advice, training and education to professionals and voluntary agencies involved in all aspects of Huntington’s disease care.

The successful candidate will be enthusiastic and motivated to have a positive influence on the quality of life of the individuals and families they support. This role is open to health and social care staff from a wide-range of backgrounds, such as Nursing, Allied Health Professional, Social Work or Medicine. Professional body membership is essential. Previous experience of Huntington’s disease would be advantageous, but is not essential. Training on Huntington’s disease will be provided.

You should be able to work autonomously in this challenging and rewarding position. Good listening, communication and interpersonal skills are vital, as are excellent time keeping and caseload management abilities. Community-based practice knowledge, a driving licence and use of a car complete our list of essential criteria. The successful candidate will be subject to an enhanced disclosure check.

Scottish Huntington’s Association (SHA) is the only charity in Scotland dedicated exclusively to the care and support of individuals and families whose lives are impacted by Huntington’s disease, an incurable neurological condition with severe and complex physical, mental health and cognitive symptoms.

Join us and you will find a values-driven organisation, founded by families for families. We are recognised at national and international levels for our expertise in supporting the Huntington’s disease community through our Huntington’s Disease Specialists, Specialist Youth Advisors and Financial Wellbeing Officers.

Shortlist
This vacancy has now closed

Admin / Resource Worker

  • Part time
  • £18,938 – £20,259 pro-rata
  • Highland - Hybrid working model (office and home-based), location to be determined by location of successful applicant
  • Closing 20th January 2023

Scottish Huntington’s Association is the only organisation in Scotland to exclusively support individuals, and their families, whose lives are impacted by Huntington’s disease (HD). Recognised as one of the world leaders in Huntington’s disease care, we are looking for an experienced administration worker to join our team.

Providing support to the Senior Huntington’s Disease Specialist (SHDS) in our Highland Service, the part-time Admin /Resource Worker role has a key role to play in the HD Specialist team which provides care management, specialist assessment and regular emotional support to individuals, and their families, throughout the Highlands. The specialist service works in partnership with, and provides training and education to, local Health and Social Care teams, professionals and voluntary agencies involved in all aspects of Huntington’s disease care.

Scottish Huntington’s Association invites applications from experienced administration workers with excellent communication, IT and interpersonal skills. The right candidate will have a competence of using databases and spreadsheets and have a working knowledge of NHS IT applications and audio typing. You will be able to carry out basic budgetary tasks, manage HD Specialist diaries and take minutes of team meetings. We are looking for someone who is enthusiastic, motivated and takes great pride in the work they carry out.

Shortlist
This vacancy has now closed

Specialist Youth Advisor (North East)

  • Full time
  • £29,848 – £31,615
  • Home based with regular travel throughout Grampian, Highlands, and Tayside.
  • Closing 28th November 2022

Are you passionate about working with children and young people? Can you work with families to make a positive change to their lives? Can you provide ongoing, tailored support through one-to-one sessions, group work, residentials and camp?

If so, an exciting opportunity has arisen to join Scottish Huntington’s Association Youth Service, as a Specialist Youth Advisor. You’ll support vulnerable children and families throughout North/East Scotland.

We’re looking to appoint either one full-time post (36 hours) with travel throughout Highlands, Grampian and Tayside, or we will consider two part-time posts (one covering Highlands, one covering Grampian and Tayside).

As a Specialist Youth Advisor, you will be responsible for your own caseload of young people to support through bespoke, individual sessions focussing on what is going on for them in their family. You will help plan and co-ordinate group work sessions, activity days, residentials and our summer camp.

You will be highly organised with a proven ability to build trusting relationships to empower children and young people to manage the complexities of living with Huntington’s disease, and their own genetic risk. Experience of child and adolescent mental health difficulties, young carers’ issues and child protection is advantageous.

Previous experience or knowledge of Huntington’s disease would be advantageous, but not essential as training and ongoing mentorship will be provided.

Scottish Huntington’s Association youth service works with children and families aged 8-25 impacted by familial Huntington’s disease. To affect positive change for our families, we focus on a person-centred approach in managing Huntington’s disease including psychoeducation, information and advice, peer support and respite opportunities. The

Specialist Youth Advisor is a pivotal role within the North/East, and will provide a vital link in supporting young people in this region, in line with SHA’s strategic aims.

You will work from home with regular travel throughout Grampian, Highlands, and Tayside. There will also be travel required occasionally to central Scotland.

This post will include out of hours and periodic weekend working. As well as a competitive salary, we offer benefits including flexible working practices, a generous leave allowance totalling 37 days (25 days Annual leave and 12 days public holidays) and enrolment to a pension scheme. Salary and holidays pro-rate if part-time.

All applications considered equally.

About Scottish Huntington’s Association

SHA is the only charity in Scotland dedicated exclusively to supporting people whose lives are impacted by this devastating disease. It was founded by families for families, and you will find a values-led organisation, work alongside colleagues with unique insights and expertise, and discover how SHA continues to be inspired and driven by the families we serve.

Huntington’s disease (HD) is caused by a hereditary gene fault that leads to severe physical and psychological symptoms. There is no cure and its devastating impact is compounded further by the reality that each child of a parent with Huntington’s is at 50% risk of inheriting the disease.

Shortlist
This vacancy has now closed

Huntington's Disease Specialist

  • Full time or Part time
  • £31,615 – £34,976
  • Raigmore Hospital, Old Perth Road, Inverness, IV2 3UJ Hybrid working model (office and home-based)
  • Closing 24th October 2022

Scottish Huntington’s Association (SHA) is the only charity in Scotland dedicated exclusively to the care and support of individuals and families whose lives are impacted by Huntington’s disease, an incurable neurological condition with severe and complex physical, mental and cognitive symptoms.

An exciting opportunity has arisen to join our Adult Clinical Services Team serving families in the Highlands. The role holder will provide provide care management, specialist assessment and emotional support to individuals and their families. Working in partnership with local Health and Social Care teams, and with the support of the Grampian Genetics Service, the Adult Clinical Service for the HIghlands also provides advice, training and education to professionals and voluntary agencies involved in all aspects of Huntington’s disease care.

The successful candidate will be enthusiastic and motivated to have a positive influence on the quality of life of the individuals and families they support. A background in allied health, nursing or social work, and a current professional body membership, is essential. Experience of working with Huntington’s disease is preferred, however we will provide you with all the condition-specific knowledge you need.

You should be able to work autonomously in this challenging and rewarding position. Good listening, communication and interpersonal skills are vital, as are excellent time keeping and caseload management abilities. Community-based practice knowledge, a current driving licence and the use of a car complete our list of essential criteria. The successful candidate will be subject to an enhanced disclosure check.

At Scottish Huntington’s Association, you will find a values-driven organisation, founded by families for families. We are recognised at national and international levels for our expertise in supporting the Huntington’s disease community through a nationwide network of Huntington’s Disease Specialists, Specialist Youth Advisors and a Financial Wellbeing Service.

Shortlist
This vacancy has now closed

Admin/Resource Worker

  • Part time
  • £18,938 – £20,259 pro-rata
  • Inverness, Highland (office and home-based)
  • Closing 9th September 2022

Scottish Huntington’s Association is the only organisation in Scotland dedicated exclusively to the care and support of families impacted by Huntington’s disease (HD), an incurable neurological condition with severe and complex physical, mental and cognitive symptoms.

Providing support to the HD Specialist in our Highland Service, the part-time Admin/Resource Worker role is an integral part of this service. The service provides care management, specialist assessment and emotional support to individuals and their families throughout the Highlands. The specialist service works in partnership with, and provides training and education to, local health and social care teams, professionals and voluntary agencies involved in all aspects of HD care.

Scottish Huntington’s Association invites applications from experienced administration workers with excellent communication, IT and interpersonal skills. The right candidate will have a competence of using databases and spreadsheets and a working knowledge of NHS IT applications and audio typing. You will be able to carry out basic budgetary tasks, manage HD Specialist diaries and take minutes of team meetings. We are looking for someone who is enthusiastic, motivated and has a great pride in the work they carry out.

Shortlist
This vacancy has now closed

Financial Wellbeing Officer

  • Part time
  • £30,716 pro-rata
  • Hybrid Model: Home based / office based
  • Closing 30th September 2022

Are you motivated to make a positive change to the lives of people who live in families that are impacted by the devastating, neurological condition Huntington’s disease? This is an exciting opportunity to become part our National Financial Well- Being Service (FWS.) You will work closely with the FWS Lead and two other FWO’s to provide invaluable financial support to people living in HD families. The post holder will work in an integrated style with SHA’s Huntington’s disease (HD) Specialists, our national Specialist Youth Service including professional staff from a wide variety of backgrounds and multiple external agencies.

We are looking for someone who is enthusiastic, motivated and who will have a positive influence on the quality of life for individuals and their families impacted by Huntington’s disease (HD) by managing and delivering a high quality Financial Wellbeing & Energy Advice service including welfare rights; debt advice; energy advice and financial planning & products.

The successful candidate should be able to work autonomously in this challenging and innovative post. Good listening, communication and interpersonal skills are essential, as are excellent time keeping and caseload management skills. A substantial level of financial work experience is essential. This is a community post, therefore a clean, current driving licence and use of a car complete our list of essential requirements.

Region: National Post - South West Scotland

The successful candidate will be subject to an enhanced disclosure check.

Shortlist
This vacancy has now closed

Senior Huntington’s Disease Specialist

  • Part time
  • £34,976 – £38,074 pro-rata
  • Dumfries and Galloway, Home and Office base TBC
  • Closing 25th August 2022

Scottish Huntington’s Association is the only charity in Scotland dedicated exclusively to the care and support of individuals and families whose lives are impacted by Huntington’s disease, an incurable neurological condition with severe and complex physical, mental and cognitive symptoms.

In line with our commitment to ensuring all families have access to the specialist services they need, we are expanding our services in Dumfries and Galloway and are now seeking a part-time Huntington’s Disease Specialist.

The successful applicant will work alongside families impacted by Huntington’s disease to provide a bespoke Specialist Huntington’s disease service which includes specialist assessment, one to one emotional support, facilitation of Huntington’s disease care management, and providing advice and information.

Working in partnership with Dumfries and Galloway NHS Health and Social Care teams, the service will also provide advice, training and education to professionals and voluntary agencies involved in all aspects of Huntington’s disease care.

We are looking for someone who is enthusiastic and motivated to have a positive influence on the quality of life for individuals and their families who are impacted by Huntington’s disease. Applicants should have the ability to work autonomously using their own initiative in this challenging and innovative post. Good listening, communication and interpersonal skills are essential, as are excellent timekeeping and caseload management skills. Previous experience of working with Huntington’s disease is preferred but not essential. Our staff have been recruited from a variety of backgrounds in mental health, physical disability, social work, neurology and palliative care. Scottish Huntington’s Association will provide the opportunity for the successful candidate to acquire all the specialist knowledge required.

We invite applications from professionals who have a background in allied health, nursing or social work, and who have a valid, current professional qualification and membership with their professional body.

A substantial level of post-basic experience is desirable. Community-based practice knowledge and a clean current driving licence and use of a car is essential.

The successful candidate will be subject to an enhanced disclosure check.

Shortlist
This vacancy has now closed

Financial Wellbeing Officer

  • Full time
  • £30,408
  • Hybrid working – home-based/office-based (Aberdeen Royal Infirmary)
  • Closing 8th July 2022

Are you motivated to make a positive change to the lives of people who live in families that are impacted by the devastating neurological condition Huntington’s disease (HD)?

This is an exciting opportunity to join our national Financial Wellbeing Service (FWS). You will work closely with Service Lead and two other Financial Wellbeing Officers to provide invaluable financial support to people living in HD families. You will also work in an integrated style with the charity’s HD Specialists, Youth Advisors and professional staff from across the organisation and multiple external agencies.

We are looking for someone who is enthusiastic and motivated to have a positive influence on the quality of life for individuals and their families through the management and delivery of a high quality financial wellbeing service. This includes providing specialist advice on welfare rights, debt management, energy use and future planning.

The successful candidate will have a substantial level of experience in the advice sector and the confidence and knowledge to work autonomously in this challenging and rewarding role. Good listening, communication and interpersonal qualities are essential, as are excellent time keeping and caseload management skills. This is a community post therefore a clean, current driving licence and use of a car are also required.

The successful candidate will be subject to an enhanced disclosure check.

Shortlist
This vacancy has now closed

Huntington's Disease Specialist

  • Part time
  • £31,615 – £34,976 pro-rata
  • Hybrid working model (office and home-based) - Greater Glasgow & Clyde.
  • Closing 11th July 2022

Scottish Huntington’s Association is the only charity in Scotland dedicated exclusively to the care and support of individuals and families whose lives are impacted by Huntington’s disease, an incurable neurological condition with severe and complex physical, mental and cognitive symptoms.

We have a vacancy for a part-time Huntington’s Disease Specialist to join our Greater Glasgow and Clyde Service which provides provide care management, specialist assessment and emotional support to individuals and their families. Working in partnership with local Health and Social Care teams, the service also provides advice, training and education to professionals and voluntary agencies involved in all aspects of Huntington’s disease care.

The successful candidate will be enthusiastic and motivated to have a positive influence on the quality of life of the individuals and families they support. A background in allied health, nursing or social work, and a current professional body membership, is essential. Experience of working with Huntington’s disease is preferred, however we will provide you with all the condition-specific knowledge you need.

You should be able to work autonomously in this challenging and rewarding role. Good listening, communication and interpersonal skills are vital, as are excellent time keeping and caseload management abilities. Community-based practice knowledge, a current driving licence and the use of a car complete our list of essential criteria. The successful candidate will be subject to an enhanced disclosure check.

At Scottish Huntington’s Association, you will find a values-driven organisation, founded by families for families. We are recognised at national and international levels for our expertise in supporting the Huntington’s disease community through a nationwide network of HD Specialists, Specialist Youth Advisors and a Financial Wellbeing Service.

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This vacancy has now closed

Financial Wellbeing Officer

  • Full time
  • £30,408
  • Hybrid Model: Home based /office based (Edinburgh)
  • Closing 25th May 2022

Are you motivated to make a positive change to the lives of people who live in families that are impacted by the devastating neurological condition Huntington’s disease? This is an exciting opportunity to become part our National Financial Wellbeing Service (FWS.) You will work closely with the Financial Wellbeing Service Lead and two other FWO’s to provide invaluable financial support to people living in HD families. The post holder will work in an integrated style with the charity’s Huntington’s disease (HD) Specialists, our national Specialist Youth Service and professional staff from a wide variety of backgrounds and multiple external agencies.

We are looking for someone who is enthusiastic, motivated and who will have a positive influence on the quality of life for individuals and their families by managing and delivering high quality financial wellbeing and energy advice service including welfare rights; debt advice and financial planning and products.

The successful candidate should be able to work autonomously in this challenging and innovative post. Good listening, communication and interpersonal skills are essential, as are excellent time keeping and caseload management skills. A substantial level of experience in the advice sector is essential. This is a community post therefore a clean, current driving licence and use of a car are also required.

The successful candidate will be subject to an enhanced disclosure check.

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This vacancy has now closed

Specialist Youth Advisor

  • Full time
  • £29,842 – £31,615
  • Home Based with regular travel throughout Greater Glasgow & Clyde, Lanarkshire, Ayrshire & Arran, and Dumfries & Galloway.
  • Closing 29th April 2022

Are you motivated to make a positive change to the lives of young people who live in families that are impacted by Huntington’s disease a devastating, hereditary, genetically transmitted neurological condition? If so, an exciting opportunity has arisen to join Scottish Huntington’s Association (SHA) Youth Service as a Specialist Youth Advisor supporting vulnerable children and families throughout South/ West Scotland.

SHA’s Youth Service works with children and families aged 8-25 to affect positive change for our young people and families, we focus on a person-centred approach to managing HD including psychoeducation, information and advice, peer support and respite opportunities. The Specialist Youth Advisor is a pivotal role within the South/West, and will provide a vital link in supporting young people in this region, in line with SHA’s strategic aims.

SHA Youth service are seeking an exemplary individual who will be responsible for managing their own complex caseload and delivering one to one support sessions in the South/West region; developing group work sessions for ages 8-12, 13-17 and 18+; providing support to practitioners; alongside providing respite opportunities at residentials and summer camp.

The post holder will need to be highly organised and have the proven ability to build trusting relationships, to empower children and young people to manage the complexities of living with HD, and their own genetic risk. Experience of child and adolescent mental health difficulties, young carers’ issues and child protection is advantageous.

The successful candidate should be able to work autonomously in this challenging and innovative post. Good listening, communication and interpersonal skills are essential. This is a community post, therefore a clean, current driving licence and use of a car complete our list of essential requirements.

This post will involve some out of hours and periodic weekend working. we offer benefits including flexible working practices, a generous leave allowance totalling 37 days (25 days Annual leave and 12 days public holidays) and a competitive pension.

The successful candidate will be subject to an enhanced disclosure check.

Post is initially funded for 12 months, with the expectation to extend upon securing additional funding.

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This vacancy has now closed

Financial Wellbeing Service Lead

  • Full time
  • £31,614 – £34,009
  • Home Based - South East Scotland
  • Closing 14th April 2022

Are you motivated to make a positive change to the lives of people who live in families that are impacted by the devastating, neurological condition Huntington’s disease? This is an exciting opportunity to become part our National Financial Well-Being Service (FWS.) With responsibility for overseeing the day to date operations of the FWS, you will work closely with multiple stakeholders – these include our team of Huntington’s disease (HD) Specialists, our national Specialist Youth Service and multiple external agencies to provide invaluable financial support to people living in HD families. As Financial Well-Being Service Lead, you will provide an integral role in the SHA Extended Leadership Team. You will be responsible for providing leadership, support and supervision to a team of 3 FW advisors, you will also have your own caseload.

We are looking for someone who is enthusiastic, motivated and who will have a positive influence on the quality of life for individuals and their families impacted by Huntington’s Disease (HD) by managing and delivering a high quality Financial Wellbeing & Energy Advice service including welfare rights; debt advice; energy advice and financial planning & products. The post holder will ideally have experience in service management as well as mentoring & supporting others in the advice sector.

The successful candidate should be able to work autonomously in this challenging and innovative post. Good listening, communication and interpersonal skills are essential, as are excellent time keeping and caseload management skills.

Previous experience of working with Huntington’s disease is desirable but not essential, a substantial level of financial work experience is essential. This is a community post, therefore a clean, current driving licence and use of a car complete is also an essential requirement.

The successful candidate will be subject to an enhanced disclosure check.

Shortlist
This vacancy has now closed

Financial Well-Being Officer – South West Scotland

  • Part time
  • £30,716 pro-rata
  • Hybrid Model: Home based / Office based
  • Closing 15th April 2022

Are you motivated to make a positive change to the lives of people who live in families that are impacted by the devastating, neurological condition Huntington’s disease? This is an exciting opportunity to become part our National Financial Well-Being Service (FWS.) You will work closely with the FWS Lead and two other FWO’s to provide invaluable financial support to people living in HD families. The post holder will work in an integrated style with SHA’s Huntington’s disease (HD) Specialists, our national Specialist Youth Service including professional staff from a wide variety of backgrounds and multiple external agencies.

We are looking for someone who is enthusiastic, motivated and who will have a positive influence on the quality of life for individuals and their families impacted by Huntington’s disease (HD) by managing and delivering a high quality Financial Wellbeing & Energy Advice service including welfare rights; debt advice; energy advice and financial planning & products.

The successful candidate should be able to work autonomously in this challenging and innovative post. Good listening, communication and interpersonal skills are essential, as are excellent time keeping and caseload management skills. A substantial level of financial work experience is essential. This is a community post, therefore a clean, current driving licence and use of a car complete our list of essential requirements.

The successful candidate will be subject to an enhanced disclosure check.

Shortlist
This vacancy has now closed

Huntington’s Disease Specialist - Ayrshire

  • Part time
  • £31,615 – £34,976 pro-rata
  • Douglas Grant Rehabilitation Centre, Ayrshire Central Hospital, Irvine, KA12 8SS Hybrid working model therefore can be home-based at times
  • Closing 28th March 2022

Scottish Huntington’s Association is the only organisation in Scotland to exclusively support individuals, and their families, whose lives are impacted by Huntington’s disease. Recognised as one of the world leaders in HD Care, we have an exciting opportunity for an experienced health and social care professional to join our team!

Due to service expansion, we have a vacancy for a part-time Huntington’s disease Specialist to join our Ayrshire & Arran HD Specialist Service. The team provide care management, specialist assessment and regular emotional support to individuals, and their families, throughout Ayrshire. The specialist service works in partnership with, and provides training and education to, local Health and Social Care teams, professionals and voluntary agencies involved in all aspects of HD care.

We are looking for someone who is enthusiastic, motivated and who will have a positive influence on the quality of life of the individuals on their caseload.

Scottish Huntington’s Association invites applications from people from an allied health professional, nursing or social work background and you must have a current professional body membership. Previous experience of working with Huntington’s disease is preferred, but not essential. We will provide you with all the condition-specific knowledge you need.

The successful candidate should be able to work autonomously in this challenging and innovative post. Good listening, communication and interpersonal skills are vital, as are excellent time keeping and caseload management abilities. Community-based practice knowledge, a clean, current driving licence and the use of a car complete our list of essential criteria.

The successful candidate will be subject to an enhanced disclosure check.

Shortlist
This vacancy has now closed

Financial Controller

  • Part time
  • £35,464 pro-rata
  • Linwood
  • Closing 4th March 2022

Scottish Huntington’s Association (SHA) is a vibrant, values-led organisation founded by families for families impacted by Huntington’s disease (HD).

We are looking for an experienced part-time Financial Controller to join our small but busy team based at SHA’s National Office in Paisley. Your duties will involve the management of the finance-related processing tasks, such as income, expenditure, expenses, payroll and management accounts administration.

With at least three years’ experience in a similar role, you will have a good working knowledge of SAGE Accounts, IRIS payroll and Excel or similar financial software packages.

Training and a full induction programme will be provided, and your 18-hour weekly working pattern is negotiable.

For now, as the pandemic continues, you will be provided with a laptop to support a blend of home and socially-distanced Covid-19 compliant office working.

This is an exciting opportunity to share your skills and expertise as part of a unique organisation dedicated to transforming the lives of families facing the challenges of this currently incurable neurological disease every day.

Job Outline/Description

The Financial Controller is accountable for delivering an accurate trail of company income and expenditure and presenting the results on a monthly basis in an excel spreadsheet format for the Senior Leadership Team (SLT) and Board Members. This work entails a close working relationship with two other members of the SHA Finance team.

You will be responsible in submitting and gathering accurate year end reports for submission to the auditors and working alongside the audit team and Finance team to produce an accurate account of SHA’s financial activities for the year.

You will be responsible for working with SLT and all budget holders to produce annual budgets to be submitted to the Board for approval.

The duties above are a fundamental requirement of the role however you will be required to assist members of the Finance team, SLT and budget holders with any finance expertise that may require your input.

In your capacity you will be a valued member of the operation and be expected to provide accurate financial information to help SHA staff make an accurate assessment of any financial requirements that may arise.

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This vacancy has now closed

Fundraising Officer

  • Full time or Part time
  • £24,379 – £26,963
  • Home working covering North East Scotland
  • Closing 27th September 2021

Are you motivated to make a positive change to families who are impacted by the devastating, neurological condition, Huntington’s disease? Do you have the skills and determination to meet and exceed fundraising goals alongside your colleagues?

If so, an opportunity has arisen to join Scottish Huntington’s Association (SHA) as a Fundraising Officer, responsible for building relationships with existing and potential new supporters in the North East of Scotland.

You will support our small and dedicated team in managing a portfolio of community, corporate and individual relationships whilst identifying prospective new contacts.

This post is being offered full time or part time, you will benefit from flexible working, a generous leave allowance of 37 days (25 days annual leave and 12 days public holidays) and a competitive pension.

You will have a proven ability to build trusting relationships and inspire further support towards the charity, as well as good research skills and record keeping.

You will be home-based with travel expected throughout your territory and occasionally to National Office in Paisley.

Huntington’s disease (HD) is caused by a hereditary gene fault that leads to severe physical and psychological symptoms. There is no cure and its devastating impact is compounded further by the reality that each child of a parent with Huntington’s is at 50% risk of inheriting the disease.

SHA is the only charity in Scotland dedicated exclusively to supporting people whose lives are impacted by this devastating disease. It was founded by families for families, and you will find a values-led organisation, work alongside colleagues with unique insights and expertise, and discover how SHA continues to be inspired and driven by the families we serve.

Shortlist
This vacancy has now closed

Specialist Youth Advisor

  • Full time
  • £28,694 – £30,399
  • North East Scotland-Including Highlands, Grampian and Tayside
  • Closing 25th June 2021

Are you motivated to make a positive change to the lives of children who are impacted by the devastating, neurological condition, Huntington’s disease within their family? Could you provide the support needed to cope with the unique and complex challenges they face each day? If so, an exciting opportunity has arisen to join Scottish Huntington’s Association (SHA) Youth Service as Specialist Youth Advisor supporting our vulnerable children and families throughout North/ East Scotland.

The Scottish Huntington’s Association (SHA) Youth Service works with children and young people aged 8 to 25, delivering a person-centred approach including psychoeducation, information and advice, peer support and respite opportunities.

We seek an exemplary individual to join us as a Specialist Youth Advisor for the North/East. This is a full time post: 36 hours per week with some out of hours and periodic weekend working. In addition to a competitive salary of £28,694 - £30,399, you will benefit from flexible working, a generous leave allowance of 37 days (25 days annual leave and 12 days public holidays) and a competitive pension.

As an SHA Specialist Youth Advisor, you will provide lifeline support for young people across the north east of Scotland, including Highlands, Grampian and Tayside. The Youth Service team manages a complex caseload while delivering one to one support sessions and developing group work sessions for ages 8-12, 13-17 and 18 years +. In addition, our Specialist Youth Advisors provide support to practitioners and deliver respite opportunities for our young people through, for example, residential trips and our annual summer camp.

A proven ability to build trusting relationships and empower children and young people is essential, and experience of child and adolescent mental health difficulties, young carer issues and child protection is advantageous.

You will work from home or from our base in the North East Scotland Regional Genetics Centre in Aberdeen, with regular travel throughout Highland, Grampian and Tayside. Home working remains in place as a result of Covid-19 restrictions. However, moving forward, as restrictions lift, team members will soon be spending some of their time at the workplace too and will be carrying out face to face visits.

Huntington’s disease (HD) is caused by a hereditary gene fault that leads to severe physical and psychological symptoms. There is no cure and its devastating impact is compounded further by the reality that each child of a parent with Huntington’s is at 50% risk of inheriting the disease.

SHA is the only charity in Scotland dedicated exclusively to supporting people whose lives are impacted by this devastating disease. It was founded by families for families, and you will find a values-led organisation, work alongside colleagues with unique insights and expertise, and discover how SHA continues to be inspired and driven by the families we serve.

Shortlist