Scottish Huntington's Association
Scottish Huntington's Association

Charity registered in Scotland SC010985

Scottish Huntington’s Association (SHA) is a Scottish charity that was established by families living with Huntington’s disease (HD) in the late 1980s. Experiencing directly the dearth of services available to them, the organisation pursued the goal of setting up specialist family support services and this ultimately blossomed into the development of an extensive network of specialist services.


Current vacancies

Specialist Youth Advisor

  • Part time
  • £31,656 – £33,537 pro-rata
  • Hybrid/Remote: Based in Highland region (preferably near Inverness, with travel)
  • Closing 7th February 2025

Are you passionate about working with children and young people? Can you work with families to make a positive change to their lives? Can you provide ongoing tailored support through one-to-one sessions, group work, residentials and camp?

An exciting opportunity has arisen to join Scottish Huntington’s Association Youth Service as a Specialist Youth Advisor providing support for vulnerable children and families throughout Highland, Grampian and Moray through bespoke, individual sessions. If you are someone with dedication, talent and expertise, we want to hear from you.

Scottish Huntington’s Association Youth Service works with children and families aged 8-25 impacted by familial Huntington’s disease. To affect positive change for our families, we focus on a person-centred approach to managing Huntington’s disease including psychoeducation, information and advice, peer support and respite opportunities. The Specialist Youth Advisor role is pivotal and will provide a vital link in supporting young people in this region in line with the strategic aims of Scottish Huntington’s Association.

You will be responsible for your own caseload and will help plan and co-ordinate group work sessions, activity days, residentials and our summer camp.

Highly organised with a proven ability to build trusting relationships, you will help to empower children and young people to manage the complexities of living with Huntington’s disease and their own genetic risk. Experience of child and adolescent mental health difficulties, young carers’ issues and child protection is advantageous.

Previous experience or knowledge of Huntington’s disease is preferred but not required as full training and ongoing mentorship will be provided.

You will work from home with regular travel throughout Highland, Grampian and Moray. There will also be travel required for organisation-wide meetings.

This post will include out-of-hours and periodic weekend working. In addition to a competitive salary, we offer benefits including flexible working practices, a generous leave allowance totalling 37 days (25 days annual leave and 12 days public holidays, pro-rata), a competitive contribution pension scheme and incremental pay increases (pro rata) to top of scale.

About Scottish Huntington’s Association

People impacted by Huntington’s disease need specialist services to cope with a severe and complex disease, the impact on families and a lack of awareness amongst health and social care providers and the wider public.

Scottish Huntington’s Association is the only charity in the country exclusively dedicated to providing expert and personalised support for those impacted by Huntington’s disease.

Scottish Huntington’s Association is the only charity in the country exclusively dedicated to providing expert and personalised support for those impacted by Huntington’s disease, guided by our five-year plan, Standing Tall – A Strategy for Growth 2023 – 2028.

Our personalised support reduces unnecessary hospital admissions, supports carers and other family members; lowers household poverty; and alleviates wellbeing risks to children and young people living in Huntington’s families.

We are commissioned by NHS Boards and Health and Social Care Partnerships throughout the country to share our expertise with frontline staff and build support for improved services and higher standards of care for every family impacted by this devastating disease. Scottish Huntington’s Association also plays a full and active role in attracting the global research community to Scotland to work in partnership with us to improve the lives of families impacted by Huntington’s disease.

At Scottish Huntington’s Association you will find a values-driven organisation, founded by families for families and recognised at national and international levels for its expertise and support. Our services are delivered through a nationwide network of Huntington’s Disease Specialists, Specialist Youth Advisors and Financial Wellbeing Officers.

Shortlist

Huntington’s Disease Specialists X 3

  • Part time
  • £33,537 – £37,103 pro-rata
  • Hybrid: Paisley
  • Closing 14th February 2025

Are you looking for a role in which you will improve the lives of families in your community? One that enables you to work differently, build your knowledge and skills and feel valued by clients, colleagues and the organisation you work for?

We are looking for medical or Health and Social Care professionals to join our nationwide network of Huntington’s Disease Specialists who provide care management, specialist assessment and emotional support to individuals and families across Scotland.

Working in partnership with local Health and Social Care teams, you will also provide advice, training and education to professionals and voluntary agencies involved in all aspects of Huntington’s disease care.

The successful candidate will be enthusiastic and motivated to have a positive influence on the quality of life of the individuals and families they support. This role is open to medical and health and social care staff from backgrounds such as nursing, allied health, social work and medicine. Professional body membership is essential. Previous experience of Huntington’s disease is advantageous but not essential as full training will be provided.

You should be able to work autonomously in this challenging and rewarding position. Good listening, communication and interpersonal skills are vital, as are excellent time keeping and caseload management abilities. Community-based practice knowledge, a driving licence and use of a car complete our list of essential criteria. The successful candidate will be subject to an enhanced disclosure check.

In addition to a competitive salary, we offer benefits including flexible working practices, a generous leave allowance totalling 37 days (25 days annual leave and 12 days public holidays, pro-rata), a competitive contribution pension scheme and incremental pay increases (pro rata) to top of scale.

About Scottish Huntington’s Association

At Scottish Huntington’s Association you will find a values-driven organisation, founded by families for families and recognised at national and international levels for its expertise.

Our services reduce unnecessary hospital admissions, support carers and other family members; lower household poverty; and alleviate wellbeing risks to children and young people living in Huntington’s families. We are commissioned by NHS Boards and Health and Social Care Partnerships throughout the country to share our knowledge and skills with frontline staff and build support for improved services and higher standards of care for every family impacted by this devastating disease.

Scottish Huntington’s Association also plays a full and active role in attracting the global research community to Scotland to work in partnership with us to improve the lives of families impacted by Huntington’s disease.

It’s an exciting time to join us with the implementation of Standing Tall: A Strategy For Growth 2023 – 28 which aims to transform the care and support of Huntington’s families, expand services, raise awareness, and deepen our involvement and support for world-leading research and clinical trials.

Shortlist
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