Do you want to use your skills to make it possible for people with myeloma, an incurable blood cancer, to live longer and better lives?

Myeloma UK is looking for a motivated and highly proactive Senior Policy Officer to join our Patient Advocacy team within the wider Research and Advocacy directorate.

You will have experience in analysing, developing, and communicating complex policy issues, strong communication skills, and the ability to prioritise a fast-moving and wide-ranging workload.

You will also have experience working collaboratively and building relationships with a range of internal and external stakeholders.

You will have the ability to present findings and recommendations to a range of audiences and produce high-quality succinct briefings in a timely fashion, underpinned by evidence.

Empathy and sensitivity are required to work closely with patients and their families and friends.

Experience in the health charity sector, public/patient engagement work, and working on the National Institute of Health Care Excellence (NICE) and Scottish Medicines Consortium (SMC) consultation processes would be beneficial but not essential.

About the role

As Senior Policy Officer you will be part of the Patient Advocacy team who work to ensure that the patient voice is heard and acted upon by UK and devolved nations healthcare policy decision makers. You will represent the charity externally including national meetings with senior healthcare decision makers.

Your role is vital to developing strategic approaches to health technology appraisals (HTA), regulatory pathways (MHRA), clinical development programmes (academic and industry clinical trials) and commissioning routes to broaden access to new myeloma drug therapies and diagnostic technologies.

You will apply your skills flexibly across key policy areas including access to treatment, patient voice, stakeholder engagement and general healthcare policy and work with colleagues in communications and fundraising to make sure our supporters and the wider myeloma community understand the positive impact we make.

About us

Myeloma UK is the only UK charity focused on myeloma and its related conditions. We provide support and influence access to treatments, while researching a cure. Thanks to life-extending treatments and support, today many people affected by myeloma are able to live longer and to live well. Together, we support, so no one faces myeloma alone.

We are committed to bringing together the best and brightest people to help us ensure that every patient has an empowered present and a hopeful future.

Our ultimate goal is to find a cure and make myeloma history. Until then, our mission is to help every patient live well with myeloma for as long as possible. We are committed to diagnosing myeloma earlier, discovering and sharing knowledge, transforming the patient experience and influencing positive change in care.

Our culture

Wellbeing and staff engagement are at the heart of our culture. We offer our employees a range of benefits including a pension salary exchange scheme, flexitime, flexible working from home with hub-based office working, health plan, employee assistance plan and holiday purchase scheme and we are committed to providing learning and development opportunities for all our employees.

In 2023, the ALLIANCE adopted a new, five-year strategic plan and since 2024 we have been strengthening the way we effectively evaluate and report on the impact of our activity to share learning, influence decision-makers, and strengthen reporting.

To continue this work, we are seeking a dynamic and creative Impact and Evaluation Manager to undertake and support impact planning at individual, programme and organisation level, providing practicable support to enable and evaluate impact and help embed a culture of evaluation impact and knowledge exchange.

You will have previous experience of developing and supporting research impact and knowledge exchange activity, and of reporting on research activity. You will have strong organisational, analytical and communication skills, and an ability to work effectively with a range of stakeholders internally and externally.

Key Responsibilities:

• Lead the implementation of an organisation-wide approach to evaluating ALLIANCE activity and its impact.

• Work collaboratively with ALLIANCE colleagues and external consultants to develop and refine outcome maps and suitable evidence data-gathering tools

• Support ALLIANCE colleagues to gather accurate and meaningful data linked to our activities, programmes and strategic priorities

• Work with colleagues and partners to develop and embed a consistent approach to evaluation

• Ensure evaluation processes are used effectively to ensure that they provide accurate data and regular, meaningful reports

• Analyse, interpret and communicate monitoring and evaluation information to colleagues, external partners and funders

• Work with ALLIANCE colleagues to create a range of robust and accessible evaluation reports and other outputs from data gathered including the Annual Report and a mid-term review of our strategic priorities

• Support to teams to gather data and develop impact case studies for reporting and communications activities

• Any other duties as dictated by the evolving nature of the ALLIANCE’s monitoring and evaluation work

• Any other reasonable duty as required by senior management.

As an ALLIANCE employee you will benefit from:

• 210 hours annual leave (equivalent of 30 days) (pro rata)

• 13 days public holiday that can be taken flexibly (pro rata)

• Additional leave between Christmas and New Year

• Contributory pension scheme

• Open to flexible working (formal and informal)

• Hybrid working – opportunity to work from home for part of the week

• Enhanced maternity and paternity pay

• Enhanced sick pay

• Employee Assistance Programme

• Learning and development opportunities

• Corporate rates for gym membership

• Time off in lieu

• Cycle Scheme

• Carer Positive Employer

We are a healthy working lives employer and encourage a healthy work life balance and we’re happy to talk flexible working.

The ALLIANCE recognises that in real life, great people don’t always ‘tick all the boxes’. Even if you don’t meet every point on the job description, if this role and our organisation feels like a good fit for you, we still want to hear from you.

About Starcatchers

We champion exceptional, innovative arts and creative experiences for our youngest children, those aged from birth to 5 years old and their parents and carers. The voice, needs and interests of this audience are at the heart of all our activity, providing inspiration and provocation in the development of projects and programmes. Our work is created by highly specialist artists who are attuned to the requirements of making work for and with this unique age group. Supported by nearly 20 years of high-quality work, evidenced through research and evaluation, Starcatchers is recognised around the world as being at the forefront of artistic practice for Early Years.

Primary Purpose

This is a new role within a refreshed Starcatchers Staff Team for 2025/26 and beyond. The post-holder will be pivotal in the development of our Community Engagement activity leading on the implementation of this work, supporting the specialist Starcatchers Artists who lead on delivery, nurturing existing and seeding new relationships within communities and securing funding to sustain activity moving forward.

Specific Duties and Responsibilities

Community Engagement

• To lead on the development and delivery of all Starcatchers' Community Engagement activity including current programmes
• Seed new activities in line with organisational priorities
• To ensure the implementation of a continuous improvement framework within the team
• To ensure the principles of Starcatchers Voice of the Baby research are embedded and reflected in artistic practice
• To ensure the participation of the babies, young children, parents and carers who engage in Starcatchers activity is evident in all aspects of service delivery
• To develop and maintain relationships with partners to support the delivery andpotential future development of project activity
• To oversee the implementation of research and evaluation surveys across all Community Engagement activity and provide feedback and figures for reporting,evaluation and development purposes
• To manage the Community Engagement budgets and ensure delegated budgets operate within organisational monitoring and reporting arrangements.
• To regularly attend Community Engagement sessions and provide support to delivery staff
• To ensure the Health & Safety policy is implemented in accordance with best practice and all activity is planned to include risk-assessment and compliance with Health and Safety and event management regulations
• To ensure the effective implementation of Starcatchers policies and procedures
• To provide line management support to the Community Engagement Artists

Fundraising

• To identify and apply for funding for Community Engagement programmes, both existing and new initiatives
• To support or lead on reporting to funders as required

General

• To play an active role in the strategic development of Starcatchers as a member of the Management Team
• To fully participate in company meetings and events as required
• To contribute to the on-going fundraising of the organisation as required
• To attend relevant training as and when requiredTo positively represent Starcatchers at eventsAny other duties appropriate to the post and organisation

Do you want to use your skills to make it possible for people with myeloma, an incurable blood cancer, to live longer and better lives?

Myeloma UK is looking for a motivated and pro-active Policy Officer to join our Patient Advocacy team within the wider Research and Advocacy directorate. You will have experience of analysing, developing, and communicating policy issues, excellent communication and influencing skills and the ability to present findings and recommendations to a range of audiences. The post holder will have excellent attention to detail and the ability to prioritise and work under pressure.

The successful candidate will be a highly regarded ambassador for Myeloma UK with a desire to continuously improve and to make a difference while working flexibility and using their own initiative.

Experience of public/patient engagement work, participating in government policy consultations and patient advocacy campaign work would be beneficial but not essential.

About the role

As the Policy Officer you will be part of the Patient Advocacy team who work to ensure that the patient voice is heard and acted upon by UK and devolved nations healthcare policy decision makers. You will support Myeloma UK’s ambition to deliver personalised medicine, such that every person living with and affected by myeloma and associated conditions has access to the best diagnostics, treatment and care services and quality of life experience.

Your role is vital to developing strategic approaches to UK health policy legislation and consultations to ensure that UK government and devolved nations healthcare policy supports the needs of people living with and affected by myeloma and associated conditions.

You will support the Policy Manager to assess existing healthcare policies, regulations and legislation to understand their implications for myeloma-specific healthcare systems, providers and patients

About us

Myeloma UK is the only UK charity focused on myeloma and its related conditions. We provide support and influence access to treatments, while researching a cure. Thanks to life-extending treatments and support, today many people affected by myeloma are able to live longer and to live well. Together, we support, so no one faces myeloma alone.

We are committed to bringing together the best and brightest people to help us ensure that every patient has an empowered present and a hopeful future.

Our ultimate goal is to find a cure and make myeloma history. Until then, our mission is to help every patient live well with myeloma for as long as possible. We are committed to diagnosing myeloma earlier, discovering and sharing knowledge, transforming the patient experience and influencing positive change in care.

Our culture

Wellbeing and staff engagement are at the heart of our culture. We offer our employees a range of benefits including a pension salary exchange scheme, flexitime, flexible working from home with hub-based office working, health plan, employee assistance plan and holiday purchase scheme and we are committed to providing learning and development opportunities for all our employees.